Hi�Pat, I'm so pleased for you - I remember how upset you were a couple of months ago. It just goes to show whay difference a good Dr makes - by good, I mean one who takes the time to sit down and explain things for you. Your PCR is very low, and if you can cope with the Glivec side effects, then I'd stick with it and save the BMS for later (if ever it's needed) Barbara--- In [email protected], "Zavie Miller" <[EMAIL PROTECTED]> wrote: > YAHOOO!!! YIPPEEE!!! > Number 815 in the Zero Club > Zavie > > Based on the PCR value of 0.00536 > > > Hi Everyone, I hope this email finds everyone doing > well. Much love and prayers to Dane who seems to be > doing miraclously. Prayers to those of you trying to > get in the clinical trials... > > I, myself have been feeling desperate in the last few > months to qualify to get in the Phase II BMS drug > trial...well, today my life took a complete 180 degree > turn around and I want to share it with everyone. If > everyone can remember, I have been seen by a doctor > for 1 year who has, since my first visit tried to > convince me I needed to go the transplant route. This > doctor left this month to take another position at a > different hospital and today I saw another oncologist > for the first time but in the same office. This doctor > told me I am doing well with the Gleevec, and he sees > no cause for transplant or the need for me to try any > clinical trials at this time. He explained to me in > about 20 minutes things I could not get this other > doctor to in over 12 visits. When I expressed how this > other doctor had not given me any hope, and had been > so persistent about transplant, his words were....he > is a transplanter and he pushes for transplant. He > told me transplant would be his last option unless I > personally just wanted to go this route or if my > condition called for it or side effects become > unbearable. He also gave me the actual copy of the lab > report which says ratio of BCR/ABL=0.00536 which he > commented he was pleased with. I'm still not certain > of the significance of this number so if anyone can > shed light on this, please let me know. I'm anxious to > hear what everyone has to comment on this matter. When > I walked out of that office today, it was the first > time since I was diagnosed that I felt any hope at > all, and it was just like this heavy load had been > lifted from me. This doctor graduated from Harvard and > has been in practice for 35 years(I looked him up and > also inquired from him directly). If it were you and > you had two totally different opinions...how can you > know which to put your faith into and truly trust. I > know several of you have emailed me personally and > through the group to comment that you felt this > previous doctor was too persistent about BMT and that > I needed a second opinion, which in fact he was my > second opinion, and now this doctor would be third > opinion. I'm feeling pretty confident with what I > heard today, as I said, he explained a lot of things > and was very straight forward with me. It's too much > to type the whole conversation but one thing he did > say that made me feel so confident was, BMT is the > only cure, it can heal... but it can also kill, but > should I truly need one, he would see that is what > treatment I got but I was nowhere near needing that > now. I hope everyone can feel what a shock this was to > me after being pressured for so long to do nothing > other than BMT. Please share with me your opinions and > your own personal similarties if there are any. I have > an appointment March 1st to see if I qualify for > clincial trial and don't know if I should go or not > and I did not mention to this doctor that I had the > appointment. He did tell me if I learned of any news > about a trial in this area that I wanted to see if I > qualified, he would help me. He did stress that all my > blood counts were normal and I was not resistant to > Gleevec so he doubted I would qualify for anything > else, and that he thought the Gleevec was working for > me at this time but if I had other reasons, such as > intolerable side effects, he would do everything in > his power to help me find another alternative. > > I apologize for the long email....but I thank you all > for being here for me to consult with. I'll be waiting > to hear everyone's response. In the meantime, I am > celebrating.....LIFE! Love, Peace & Hope to All, Pat > > > > __________________________________ > Do you Yahoo!? > Yahoo! Mail - Helps protect you from nasty viruses. > http://promotions.yahoo.com/new_mail << File: [CMLHope] Pat's Update.txt >>
------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
