--- In [email protected], char fisher <[EMAIL PROTECTED]> wrote: > Nancy, i had the back and neck pain before i found out about the leukemia, and yes my spleen was swollen i think he said it was 12 inches and the norm is 7.my WBC was 98000 not too bad compared to some ive seen . My only concern right now is that my counts are rising. The back and neck pain came back after taking the gleevec for 2 months and now its disteneded down my back , the motrin doesnt help. I do need to find a good Dr. in my area. My doc is short on answers and insensitive to my constant questioning. I think hes burnt out. He was my grandmas Doc , he was very good with her but has no bedside manner as far as im concerned. ______________
Hi Char, Well, your spleen was swollen before you were diagnosed, so maybe it was still the cause of the back pain? My wbc was also about 93,000 when I first started treatment (in the days before Gleevec). I do know some people who are having some back pain and the specialist (Dr. Talpaz in this case) attributes it to Gleevec. You can try a muscle relaxant.....sometimes taking extra calcium/magnesium helps.......or quinine from tonic water or pills. If you have been ill at all, like the flu, that might account for your rising counts??? And lastly, but probably most importantly, with the rapid changes in the treatment of CML and the treatment options....you need a doctor who will answer your questions and is up to date with the new information. Many of us have moved on from the first oncologist we had, to find a better one. If you post where you live, maybe someone can suggest a good doctor or a good facility to be seen. If you end up not responding real well to Gleevec, this is definitely when you want to see a cml specialist. Also, I think that www.cmlsupport.com might have a list of recommended oncologists. You want to be pro-active and demand a lot of your doctor....this is your fight to fight. Nancy C. ------------------------ Yahoo! Groups Sponsor --------------------~--> Ever feel sad or cry for no reason at all? Depression. Narrated by Kate Hudson. http://us.click.yahoo.com/1visLB/esnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
