Your story is so hopeful and I thank you for it. Cynthia Bates Schaefer ----- Original Message ----- From: <[email protected]> To: <[email protected]> Sent: Thursday, March 10, 2005 9:00 PM Subject: [CML] Digest Number 3924
> > > There are 25 messages in this issue. > > Topics in this digest: > > 1. Re: Re: New Moderator > From: Rob <[EMAIL PROTECTED]> > 2. Re: What's happened on here? > From: "John M" <[EMAIL PROTECTED]> > 3. Re: Re: What's happened on here? > From: [EMAIL PROTECTED] > 4. The state of the list > From: "Cheryl-Anne Simoneau" <[EMAIL PROTECTED]> > 5. Re: What's happened on here? > From: "traceyincanada" <[EMAIL PROTECTED]> > 6. ENOUGH!!! stop the madness > From: [EMAIL PROTECTED] > 7. Re: What's happened on here? > From: "hey00nanc" <[EMAIL PROTECTED]> > 8. Re: The state of the list > From: Rob <[EMAIL PROTECTED]> > 9. Re: What's happened on here? > From: Rob <[EMAIL PROTECTED]> > 10. Re: ENOUGH!!! stop the madness > From: Rob <[EMAIL PROTECTED]> > 11. Re: What's happened on here? > From: Rob <[EMAIL PROTECTED]> > 12. OOPS CML LINK WRONG > From: "Amy B." <[EMAIL PROTECTED]> > 13. compromise > From: Neddo Family <[EMAIL PROTECTED]> > 14. Get real,folks > From: "Cynthia Schaefer" <[EMAIL PROTECTED]> > 15. good results from bmb > From: Laquita <[EMAIL PROTECTED]> > 16. Re: What's happened on here? > From: [EMAIL PROTECTED] > 17. Re: ENOUGH!!! stop the madness > From: [EMAIL PROTECTED] > 18. Re: good results from bmb > From: "cher111376" <[EMAIL PROTECTED]> > 19. Re: What's happened on here? > From: [EMAIL PROTECTED] > 20. Re: The Grapefruit Question > From: [EMAIL PROTECTED] > 21. "TRYING TO PLEASE EVERYONE" > From: pat reynolds <[EMAIL PROTECTED]> > 22. Re: The Grapefruit Question > From: "snickersunny" <[EMAIL PROTECTED]> > 23. Re: The Grapefruit Question > From: [EMAIL PROTECTED] > 24. Re: The Grapefruit Question > From: "snickersunny" <[EMAIL PROTECTED]> > 25. Re: Get real,folks > From: [EMAIL PROTECTED] > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Thu, 10 Mar 2005 16:53:45 -0600 > From: Rob <[EMAIL PROTECTED]> > Subject: Re: Re: New Moderator > > http://health.groups.yahoo.com/group/CML/message/92967 > > > On Thu, 10 Mar 2005 22:36:38 -0000, John M <[EMAIL PROTECTED]> wrote: > > > > > > I'm not sure what post of Tracey's you refer to, please enlighten me. > > John > > > > --- In [email protected], Rob <[EMAIL PROTECTED]> wrote: > > > Are you saying that Tracey was wrong in her post? That is what I > > > recall at the time that the idea was presented to add additional > > > moderators to the group and I declined. > > > > > > Rob > > > > > > > > > --- In [email protected], "John M" <[EMAIL PROTECTED]> wrote: > > > > > > > > The only mention of anyone offering to help moderate that I am > > aware > > > > of was by Zavie after your banishment from Yahoo had already > > > > happened and was meant to help you, not take over anything. > > > > John > > > > > > > > > > > > -- In [email protected], Rob <[EMAIL PROTECTED]> wrote: > > > > > I did not say the group had me kicked off of Yahoo. > > > > > > > > > > Did the Group Of Six not bring up adding moderators to the > > group? > > > > That > > > > > is what I recall from that time and that is what Tracey just > > posted > > > > > earlier. > > > > > > > > > > Rob > > > > > > > > > > > > > > > --- In [email protected], "John M" <[EMAIL PROTECTED]> wrote: > > > > > > > > > > > > Rob, > > > > > > I am member of Zavie's Zero club. This is the only group > > that > > > > Zavie > > > > > > has, that I am aware of. Is this the group you are referring > > to? > > > > > > You make reference to Zavies group getting you kicked off of > > > > Yahoo, > > > > > > but to the best of my knowledge your problems with Yahoo had > > > > > > already happened and a few people offered suggestions that > > > > would > > > > > > benefite you as well as the entire group. NEVER did anyone > > ask > > > > to > > > > > > take over the group, only to help with keeping the group > > intact. > > > > Was > > > > > > there was some other corespondance with you in private that > > I > > > > don't > > > > > > know about? My invovlement, and that of the others only > > offered > > > > > > positive suggestions and I take offense that we in some way > > had > > > > you > > > > > > banned from Yahoo. > > > > > > John > > > > > > > > > > > > -- In [email protected], Rob <[EMAIL PROTECTED]> wrote: > > > > > > > If I recall correctly some in that group mentioned the > > > > specific > > > > > > names > > > > > > > of those who would "volunteer" to be moderators/owners. If > > had > > > > > > given > > > > > > > them control of the group at that time they would now own > > the > > > > group > > > > > > > since I was later banned by Yahoo. > > > > > > > > > > > > > > I will not be providing a list of the owners of the Google > > > > group. > > > > > > You > > > > > > > can call that secretive if you wish but at this point I do > > not > > > > > > think > > > > > > > anyone else should be subjected to the harassment I have > > > > > > encountered. > > > > > > > > > > > > > > Rob > > > > > > > > > > > > > > --- In [email protected], "hey00nanc" <[EMAIL PROTECTED]> > > wrote: > > > > > > > _____________________ > > > > > > > > > > > > > > > > Rob, > > > > > > > > > > > > > > > > I stand behind what Tracey wrote.....the group that > > > > dialogued > > > > > > with you > > > > > > > > privately did not want to become moderators, they were > > > > giving > > > > > > you > > > > > > > > input about problems with the group (all the bickering > > > > because > > > > > > of no > > > > > > > > standards of decency, etc)........and the comments > > recently > > > > made > > > > > > about > > > > > > > > photos and medical articles were NEVER even mentioned > > > > before. > > > > > > > > > > > > > > > > My question....why are you so secretive? With the new > > group, > > > > you > > > > > > say > > > > > > > > there are other moderators....so why don't you say who > > they > > > > are? > > > > > > Why > > > > > > > > isn't this open information, about who is making the > > > > decisions > > > > > > and > > > > > > > > running the group? > > > > > > > > > > > > > > > > As for this list.....you say you own it.........but you > > > > can't do > > > > > > > > anything with it? So, I guess that means you can't shut > > it > > > > down > > > > > > > > either? so it will just keep going?? You own it but you > > have > > > > no > > > > > > > > control over it and can't even disband it??? holy moly > > > > > > > > > > > > > > > > Nancy C. > > > > > > New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com > > > > Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com > > > > CML (Chronic Myelogenous Leukemia Support List) > > --------------------------------- > > Part Of CMLHope.Com > > An International Community Of CML Patients > > For more information: http://cmlhope.com > > > > Post Message: [email protected] > > Subscribe: [EMAIL PROTECTED] > > Unsubscribe: [EMAIL PROTECTED] > > Change To No Mail/Web: [EMAIL PROTECTED] > > Change To Digest: [EMAIL PROTECTED] > > Change To Email: [EMAIL PROTECTED] > > List Help: [EMAIL PROTECTED] > > CML Group Web Site http://groups.yahoo.com/group/CML > > > > Yahoo! Groups Links > > > > > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 2 > Date: Thu, 10 Mar 2005 22:55:32 -0000 > From: "John M" <[EMAIL PROTECTED]> > Subject: Re: What's happened on here? > > > Zavie called yahoo to see what it took to get kicked off of yahoo. I > was online with Zavie when he called yahoo, in fact I found the > number to get into yahoo and talk to a human. He did not ask for > your reinstatement as you had specificaly asked him to not do > anything about getting you reinstated until you found out more of > what your options were with yahoo. He only asked how a person could > be banned. > John > --- In [email protected], Rob <[EMAIL PROTECTED]> wrote: > > It is interesting that you have never ever mentioned to me that you > > have been calling Yahoo. > > > > Did you ask them to reinstate me? Did you or your group offer to > > become moderators of > > the CML group? > > > > Rob > > > > > > ----- Original Message ----- > > From: "Zavie Miller" <[EMAIL PROTECTED]> > > > > > > > > > > > > > > > Carol, > > > > > > When I heard that Rob was banned from the Yahoo site and could > no longer > > > moderate this group I took it upon myself to contact Yahoo to > try and > > > understand what happened. > > > > > > It was a huge challenge to actually speak to someone at Yahoo, > but I > > > eventually got through. I expressed my great concern that this > was a list of > > > 1800 people who had a fatal disease and it was critical that > this list > > > continued to exist. I wanted to know the reason that Rob was > kicked off > > > Yahoo. > > > > > > They wouldn't tell me why, but they assured me that they do not > ban anyone > > > from Yahoo based on a complaint by another individual. The only > reason that > > > they will ban someone from Yahoo is if they themselves have > evidence that > > > the person violated their rules of conduct or terms of service.. > > > > > > I continued to argue that this was unfair and that it would be > disastrous if > > > this group was closed. They assured me that the group would not > be shut down > > > and would continue to exist even if there wasn't a moderator. > > > > > > Zavie > > > > > > -----Original Message----- > > > From: Rob [mailto:[EMAIL PROTECTED] > > > Sent: March 10, 2005 1:36 PM > > > To: [email protected] > > > Subject: [CML] Re: What's happened on here? > > > > > > > > > > > > I do not know why I was banned from Yahoo because they will not > reveal > > > the identity of the person or persons who filed a complaint > against me > > > without the matter being taken to court. > > > > > > Rob > > > > > > --- In [email protected], [EMAIL PROTECTED] wrote: > > >> Why were you Banned from Yahoo? > > >> Carol > > >> > > > > > > > > > > > > > > > > > > > > > New! Sign up for local CML support group meetings in your local > community at http://cml.meetup.com > > > > > > Apply for Commercial Real Estate loans online and submit your > deal to dozens of hungry lenders in just minutes. Loan programs for > all types of business and commercial real estate. Apply anytime at > http://realestatezoo.com > > > > > > CML (Chronic Myelogenous Leukemia Support List) > > > --------------------------------- > > > Part Of CMLHope.Com > > > An International Community Of CML Patients > > > For more information: http://cmlhope.com > > > > > > Post Message: [email protected] > > > Subscribe: [EMAIL PROTECTED] > > > Unsubscribe: [EMAIL PROTECTED] > > > Change To No Mail/Web: [EMAIL PROTECTED] > > > Change To Digest: [EMAIL PROTECTED] > > > Change To Email: [EMAIL PROTECTED] > > > List Help: [EMAIL PROTECTED] > > > CML Group Web Site http://groups.yahoo.com/group/CML > > > > > > Yahoo! Groups Links > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 3 > Date: Thu, 10 Mar 2005 17:56:42 EST > From: [EMAIL PROTECTED] > Subject: Re: Re: What's happened on here? > > Oh Nancy, > > > [Non-text portions of this message have been removed] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 4 > Date: Thu, 10 Mar 2005 18:01:54 -0500 > From: "Cheryl-Anne Simoneau" <[EMAIL PROTECTED]> > Subject: The state of the list > > Dear Everyone, > > This has been an interesting discussion in that we are finding out what goes > on behind the scenes with this list and probably what we can expect to > happen on any other list. > > If I am understanding this all correctly, we have people writing to Rob > asking him to put better "rules" in place that would be meant to make this > list a better place. But when I read through some of the defending posts, I > see there was some discussion that, as far as I am concerned, has to do a > bit with censorship. Examples would be preventing someone from "dominating" > the list by posting "too much". This approach sets us up for another > problem, how do we all judge what is too much? And why do we feel the need > to stifle someone? > > Another troubling part is that it seems that several people approached Rob > asking that additional moderators be put in place a few months ago, and not > just when we heard that Rob was banned from Yahoo. If anyone knew that this > kind of trouble was in in store for us, why wasn't the focus shifted to > protecting the archives instead of trying to figure out who would gain > "control" of the group? > > This place hasn't been an easy place for lots of us, and sometimes we are > quick to criticize Rob. But I have to say the more I hear about the types > of complaints and pestering Rob has had to take, well I can understand now > why he has made some of the judgment calls that he has had to make. > > Can someone please explain the need for censorship, because I just don't get > it. How can anyone even think of censoring a person who is going through > the turmoil of coping with such a formidable disease. > > None of us can thrive or survive in a society (or on a listserv) that > dictates how me must think and behave. How can we be so harsh with one > another? > > Rob, I now have a better understanding of what you are going through, and > once again I am sorry you were banned for whatever reason and I am sorry you > continue to be so maligned and attacked on your own list. > > If blood will flow when flesh and steel are one > Drying in the colour of the evening sun > Tomorrow's rain will wash the stains away > But something in our minds will always stay > Perhaps this final act was meant > To clinch a lifetime's argument > That nothing comes from violence and nothing ever could > For all those born beneath an angry star > Lest we forget how fragile we are > - Sting - Fragile > > > [Non-text portions of this message have been removed] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 5 > Date: Thu, 10 Mar 2005 23:04:29 -0000 > From: "traceyincanada" <[EMAIL PROTECTED]> > Subject: Re: What's happened on here? > > > --- In [email protected], Rob <[EMAIL PROTECTED]> wrote: > > > This is not a debate group and is not a forum for people to push > their > > personal agendas and vendettas against others. > > > > Rob > > _______________________________________________________ > > I'm not sure what you mean by "personal agenda" but if our personal > agendas are to have a CML group that functions in a supportive, > respectful and informatave mannor then yes, I guess we are trying to > push our agenda. > Tracey > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 6 > Date: Thu, 10 Mar 2005 18:10:15 EST > From: [EMAIL PROTECTED] > Subject: ENOUGH!!! stop the madness > > I have had enough of the petty bickering. I am a fairly new member, I > don't care what happened in the past...the issue is: the deed is done about Rob's > situation....no amount of arguing is going to fix him being banned unless > yahoo will talk to him. We cannot intercede, and why do you folks continue to > argue... > > Rob, you should STOP responding each & EVERY time someone asks a question > about "why" about the group.....Zavie, I am finding that I would not want you > for a friend based on your ugly comments....same for a Nancy, and another lady > who continues to just go & on about the yahoo/google situation. > > As a new member, and wife of a husband who is dying from this disease....you > all SHOULD BE ASHAMED!!!!!!!! > > is there not enough bad going on the world, do we have to deal with this > here!! Here I am trying to get a grip emotionally on my life & what will > happen to my children & I did NOT come to this group for this type of conversation > > yep, I am leaving this group...yes, I joined the other google group, but I > keep seeing half of this garbage conversation popping over there too. > > obviously, I will have to look to other areas to try to help us understand > this disease > > Lora > > > [Non-text portions of this message have been removed] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 7 > Date: Thu, 10 Mar 2005 23:11:48 -0000 > From: "hey00nanc" <[EMAIL PROTECTED]> > Subject: Re: What's happened on here? > > > --- In [email protected], "hey00nanc" <[EMAIL PROTECTED]> wrote: > > > Then Rob turned the discussion to him being harassed for 2 years, > with > > calls in the middle of the night, etc......and revealed who that > > person was/is......and she is not a major poster on the CML list, > but > > her identity is known to EVERYONE in this small discussion group. Of > > course, we are taking Rob's word that this has actually occurred. > ____________________________ > > Rob, > I find it interesting that when you respond to posts, you often don't > seem to respond to the biggest issues brought up. > > You have mentioned in several new posts now about being harassed for > the last 2 years.....and by association, seem to imply that it has > been this group (hell, what group, there is no group!) > > When the small discussion group was exchanging e-mails on various > topics......you mentioned 2 years of harrassment and the constant > calls in the middle of the night and put a name to that. Well, that > did NOT have anything to do with anyone in this discussion group. > > Heck, how do we even know that you were telling us the truth? about > the calls, etc. > > When I happened to post that information on Jerry's list, it was > removed right away........and then you wrote me that that person's > spouse threatened to sue you. Well, if you were telling the truth, > what could he sue you about? Maybe what you told us as a group was not > true? he could certainly sue you if you told us a lie (isn't that > slander?) > > So why don't you come clean here? was this information true or not? > > I think you probably have been having a problem with someone for the > last 2 years?????? but it wasn't any of us, and you should > acknowledge that. > > and stop referring to us as a Group of 6........we were a small > discussion group that wrote group-directed e-mails for less than a > week!! > > Nancy C. > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 8 > Date: Thu, 10 Mar 2005 17:18:52 -0600 > From: Rob <[EMAIL PROTECTED]> > Subject: Re: The state of the list > > I have always tried to let the group be as open as possible so > everyone would have an equal opportunity to participate. In any group > where there are a large number of people there will always be personal > differences and sometimes people do push things to the extreme and it > is unfortunate some have decided to use a CML support group to do so. > > Rob > > > --- In [email protected], "Cheryl-Anne Simoneau" <[EMAIL PROTECTED]> wrote: > > Dear Everyone, > > > > This has been an interesting discussion in that we are finding out what goes > > on behind the scenes with this list and probably what we can expect to > > happen on any other list. > > > > If I am understanding this all correctly, we have people writing to Rob > > asking him to put better "rules" in place that would be meant to make this > > list a better place. But when I read through some of the defending posts, I > > see there was some discussion that, as far as I am concerned, has to do a > > bit with censorship. Examples would be preventing someone from "dominating" > > the list by posting "too much". This approach sets us up for another > > problem, how do we all judge what is too much? And why do we feel the need > > to stifle someone? > > > > Another troubling part is that it seems that several people approached Rob > > asking that additional moderators be put in place a few months ago, and not > > just when we heard that Rob was banned from Yahoo. If anyone knew that this > > kind of trouble was in in store for us, why wasn't the focus shifted to > > protecting the archives instead of trying to figure out who would gain > > "control" of the group? > > > > This place hasn't been an easy place for lots of us, and sometimes we are > > quick to criticize Rob. But I have to say the more I hear about the types > > of complaints and pestering Rob has had to take, well I can understand now > > why he has made some of the judgment calls that he has had to make. > > > > Can someone please explain the need for censorship, because I just don't get > > it. How can anyone even think of censoring a person who is going through > > the turmoil of coping with such a formidable disease. > > > > None of us can thrive or survive in a society (or on a listserv) that > > dictates how me must think and behave. How can we be so harsh with one > > another? > > > > Rob, I now have a better understanding of what you are going through, and > > once again I am sorry you were banned for whatever reason and I am sorry you > > continue to be so maligned and attacked on your own list. > > > > If blood will flow when flesh and steel are one > > Drying in the colour of the evening sun > > Tomorrow's rain will wash the stains away > > But something in our minds will always stay > > Perhaps this final act was meant > > To clinch a lifetime's argument > > That nothing comes from violence and nothing ever could > > For all those born beneath an angry star > > Lest we forget how fragile we are > > - Sting - Fragile > > > > > > [Non-text portions of this message have been removed] > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 9 > Date: Thu, 10 Mar 2005 17:23:01 -0600 > From: Rob <[EMAIL PROTECTED]> > Subject: Re: What's happened on here? > > I do not agree with the idea of having 6 people to appoint themselves > to decide what the other 1,800 people can read and post. All of the > members of this group are able to make their own decisions about what > they can read and post. I did not agree with the idea several months > ago and I do not agree with it now. > > Rob > > > --- In [email protected], "traceyincanada" <[EMAIL PROTECTED]> wrote: > > > > --- In [email protected], Rob <[EMAIL PROTECTED]> wrote: > > > > > This is not a debate group and is not a forum for people to push > > their > > > personal agendas and vendettas against others. > > > > > > Rob > > > > _______________________________________________________ > > > > I'm not sure what you mean by "personal agenda" but if our personal > > agendas are to have a CML group that functions in a supportive, > > respectful and informatave mannor then yes, I guess we are trying to > > push our agenda. > > Tracey > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 10 > Date: Thu, 10 Mar 2005 17:25:24 -0600 > From: Rob <[EMAIL PROTECTED]> > Subject: Re: ENOUGH!!! stop the madness > > I am sorry for the number of posts I have been made today but I do > feel I have a right to defend myself against those who are unwilling > to stop. > > Rob > > --- In [email protected], [EMAIL PROTECTED] wrote: > > I have had enough of the petty bickering. I am a fairly new member, I > > don't care what happened in the past...the issue is: the deed is done about Rob's > > situation....no amount of arguing is going to fix him being banned unless > > yahoo will talk to him. We cannot intercede, and why do you folks continue to > > argue... > > > > Rob, you should STOP responding each & EVERY time someone asks a question > > about "why" about the group.....Zavie, I am finding that I would not want you > > for a friend based on your ugly comments....same for a Nancy, and another lady > > who continues to just go & on about the yahoo/google situation. > > > > As a new member, and wife of a husband who is dying from this disease....you > > all SHOULD BE ASHAMED!!!!!!!! > > > > is there not enough bad going on the world, do we have to deal with this > > here!! Here I am trying to get a grip emotionally on my life & what will > > happen to my children & I did NOT come to this group for this type of conversation > > > > yep, I am leaving this group...yes, I joined the other google group, but I > > keep seeing half of this garbage conversation popping over there too. > > > > obviously, I will have to look to other areas to try to help us understand > > this disease > > > > Lora > > > > > > [Non-text portions of this message have been removed] > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 11 > Date: Thu, 10 Mar 2005 17:36:42 -0600 > From: Rob <[EMAIL PROTECTED]> > Subject: Re: What's happened on here? > > Actually Nancy they were planning to sue Jerry and you if I recall > correctly from the conversation with the husband of the person who > made the calls. It was true that I received multiple calls at 2AM, > 3AM, 4AM and had other problems with a certain person as did others. > That was communciated and known to others at the time and I would have > no problem signing an affadavit that I received those calls and I am > sure those who were made aware of it at the time would have no problem > stating so under oath either. There directly involved this group > because the calls came from a person in this group who was > dissatisfied with how the group operated. > > I did not say that the Group Of Six caused those particular problems > but as evident from the posts today other problems are originating > from the 6 people in that group who want to control the content and > direction of the group. I did not agree with the demands then and I do > not agree with them now. > > Are you saying that you and the other 5 have not communicated with > each other about these matters except for that one week some months > ago? > > Rob > > --- In [email protected], "hey00nanc" <[EMAIL PROTECTED]> wrote: > > > > --- In [email protected], "hey00nanc" <[EMAIL PROTECTED]> wrote: > > > > > Then Rob turned the discussion to him being harassed for 2 years, > > with > > > calls in the middle of the night, etc......and revealed who that > > > person was/is......and she is not a major poster on the CML list, > > but > > > her identity is known to EVERYONE in this small discussion group. Of > > > course, we are taking Rob's word that this has actually occurred. > > ____________________________ > > > > Rob, > > I find it interesting that when you respond to posts, you often don't > > seem to respond to the biggest issues brought up. > > > > You have mentioned in several new posts now about being harassed for > > the last 2 years.....and by association, seem to imply that it has > > been this group (hell, what group, there is no group!) > > > > When the small discussion group was exchanging e-mails on various > > topics......you mentioned 2 years of harrassment and the constant > > calls in the middle of the night and put a name to that. Well, that > > did NOT have anything to do with anyone in this discussion group. > > > > Heck, how do we even know that you were telling us the truth? about > > the calls, etc. > > > > When I happened to post that information on Jerry's list, it was > > removed right away........and then you wrote me that that person's > > spouse threatened to sue you. Well, if you were telling the truth, > > what could he sue you about? Maybe what you told us as a group was not > > true? he could certainly sue you if you told us a lie (isn't that > > slander?) > > > > So why don't you come clean here? was this information true or not? > > > > I think you probably have been having a problem with someone for the > > last 2 years?????? but it wasn't any of us, and you should > > acknowledge that. > > > > and stop referring to us as a Group of 6........we were a small > > discussion group that wrote group-directed e-mails for less than a > > week!! > > > > Nancy C. > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 12 > Date: Thu, 10 Mar 2005 23:18:04 -0000 > From: "Amy B." <[EMAIL PROTECTED]> > Subject: OOPS CML LINK WRONG > > > > I'm sorry I posted the CML link with lots of additives to it. I have > enjoyed my time in this group and have learned lots. Thank god it > was here. I feel its time to move on and get back to basics. SO > here is a group just for that...CML BASICS. Join if you want to, and > if not, that,s ok too. Here is the link. > > http://health.groups.yahoo.com/group/cml2/ > > > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 13 > Date: Thu, 10 Mar 2005 18:08:14 -0600 > From: Neddo Family <[EMAIL PROTECTED]> > Subject: compromise > > Since this "discussion" about moderators, bickering, etc. doesn't > involve everyone on the list, perhaps those interested in continuing > this "discussion" could email privately so everyone else could get back > to the business of CML support. Just my $.02. > > Barb Neddo, > Mom to Tom, 16 > dx CML 8/04 > BMT pending 4/05 > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 14 > Date: Thu, 10 Mar 2005 18:18:12 -0600 > From: "Cynthia Schaefer" <[EMAIL PROTECTED]> > Subject: Get real,folks > > I'm sitting here at my computer remembering that some of the people who were most negative and controlling about Sandra Landels "political issues" are the very same ones in the "group of six." You folks have to be kidding. Standards of decency???? You are unhappy with a paid -for and smoothly run web site dedicated to CML? You want to impose "standards of decency" on a group of adults who have much BIGGER things to worry about. I don't know why Rob would want to remain with this group but I laud him for doing it. I have researched all the CML sites and I think this is the best one except for the whiners and complainers who want to control free speech. And it was a really cheap shot to mention that Rob doesn't have CML. I don't either but my son does. Ooh,I have an idea--why don't all you unhappy folks start your own support group. That's the ticket! Now,I'm really mad. Cynthia Bates Schaefer > > [Non-text portions of this message have been removed] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 15 > Date: Thu, 10 Mar 2005 18:23:17 -0600 > From: Laquita <[EMAIL PROTECTED]> > Subject: good results from bmb > > Fellow CML patients and caregivers, > > I had an excellent report from my Doctor at > my Friday appointment. I am still in remission > based on the BMB that he performed at the > previous appointment. He keeps me in suspense > from the time he does the BMB until the next > scheduled appointment time. However, I feel > confident that he would call if I needed a change > in amount of IM etc. during the interim. > > In looking back in my journal I realize that I > am going on year 9. I am diagnosed in December > on l995 and started my treatments in January. I > feel so fortunate that Gleevec has been available > for me and there are now so many new drugs coming > along for those when Gleevec no longer works. The > interferon and ara-c kept me going for several years > but the injections do get tiresome. > > I still remember the hopeless, helpless feeling > I had during this time. My son was researching for > me and then he established the CML site that has > meant much to me as I have been able to share in > their experiences and learn much from the information > they share. I will forever be gateful to Robert for > provinding a source of hope for me and others. > Early on someone posted this poem from Emily Dickinson. > > "Hope" > is the thing > with feathers > that perches > in the soul > and sings the tune > without words > and never stops > --at all. > > I have this poem framed and on the dresser in > my room. It has been a comfort to me as have > the folks on this list. I am addicted to reading > and keeping up with what is going on. Through > the years I have noted that the dynamics of the > group seems to bring on seasons of "unrest" when > some become discontent and it is unfortunate > this happens. > > Laquita Neill > > -- > Email: [EMAIL PROTECTED] > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 16 > Date: Fri, 11 Mar 2005 01:43:44 -0000 > From: [EMAIL PROTECTED] > Subject: Re: What's happened on here? > > > > > > "I felt that Rob > should have stepped in when Dane made his ugly remark to me..... " > > > Still at it, eh Nancy? I go off for a bone marrow transplant and > come back to find this list in shambles, and you are still griping > about our little online spat? You force me to remind you that it > was you who fired the first shot. > > In any case, if I can recover from a Bone Marrow Transplant, I hope > you can find the character to put this behind you rather than > continually bringing it back up. > > I hold no ill will towards you, but please let this thing go. > > Dane (hatchet burried so long ago I couldn't find it again if I > wanted to) Tessler > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 17 > Date: Fri, 11 Mar 2005 01:49:40 -0000 > From: [EMAIL PROTECTED] > Subject: Re: ENOUGH!!! stop the madness > > > --- In [email protected], Rob <[EMAIL PROTECTED]> wrote: > > I am sorry for the number of posts I have been made today but I do > > feel I have a right to defend myself against those who are > unwilling > > to stop. > > > > Rob > > I know the feeling. ;o) > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 18 > Date: Fri, 11 Mar 2005 01:49:50 -0000 > From: "cher111376" <[EMAIL PROTECTED]> > Subject: Re: good results from bmb > > > Dear Laquita, > > Congratulations on your excellent report from your doctor. > > Thank you for the lovely poem and thank you for bringing Rob into > this world so that he could start this group and we could all take > part in healing ourselves. > > Hopefully others reading the list will read your post and remember > the reason and cause for this list. > > Peace, Love and congratulations - 9 years is quite a feat! > > Cheryl-Anne > > --- In [email protected], Laquita <[EMAIL PROTECTED]> wrote: > > Fellow CML patients and caregivers, > > > > I had an excellent report from my Doctor at > > my Friday appointment. I am still in remission > > based on the BMB that he performed at the > > previous appointment. He keeps me in suspense > > from the time he does the BMB until the next > > scheduled appointment time. However, I feel > > confident that he would call if I needed a change > > in amount of IM etc. during the interim. > > > > In looking back in my journal I realize that I > > am going on year 9. I am diagnosed in December > > on l995 and started my treatments in January. I > > feel so fortunate that Gleevec has been available > > for me and there are now so many new drugs coming > > along for those when Gleevec no longer works. The > > interferon and ara-c kept me going for several years > > but the injections do get tiresome. > > > > I still remember the hopeless, helpless feeling > > I had during this time. My son was researching for > > me and then he established the CML site that has > > meant much to me as I have been able to share in > > their experiences and learn much from the information > > they share. I will forever be gateful to Robert for > > provinding a source of hope for me and others. > > Early on someone posted this poem from Emily Dickinson. > > > > "Hope" > > is the thing > > with feathers > > that perches > > in the soul > > and sings the tune > > without words > > and never stops > > --at all. > > > > I have this poem framed and on the dresser in > > my room. It has been a comfort to me as have > > the folks on this list. I am addicted to reading > > and keeping up with what is going on. Through > > the years I have noted that the dynamics of the > > group seems to bring on seasons of "unrest" when > > some become discontent and it is unfortunate > > this happens. > > > > Laquita Neill > > > > -- > > Email: [EMAIL PROTECTED] > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 19 > Date: Fri, 11 Mar 2005 01:58:48 -0000 > From: [EMAIL PROTECTED] > Subject: Re: What's happened on here? > > > --- In [email protected], Rob <[EMAIL PROTECTED]> wrote: > > I found it distasteful enough when the arguments were made about > Dane > > the first time. Now is not the time or place to bring it up again. > > This is not a debate group and is not a forum for people to push > their > > personal agendas and vendettas against others. > > > > Rob > > How unfortunate that this ancient argument and my name have been > brought back up while I am flat on my back in the hospital receiving > a BMT. Nothing like kicking a man while he's down. I suppose I > should save her a seat at my funeral, even if that is 30 years from > now. > > Sorry you are having so much trouble, Rob. > > dt > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 20 > Date: Fri, 11 Mar 2005 02:11:17 -0000 > From: [EMAIL PROTECTED] > Subject: Re: The Grapefruit Question > > > Dear Lynne, > > I apologized to you for the newbie comment, with the explanation > that the comment did not translate well in email form. The apology > was sincere and immediate. Again, I was simply rejoicing in the fact > the here in the Gleevec era, we have to worry about things like > Grapefruit. I was alluding to darker times on this list before > these type of miracle drugs were available, that's all. > > I realize that the attempt at ironic humor was poorly written and > did apologize for it when you first took offense to it way back > when. There was no need for Rob to step in. You had even accepted > the apology....so why this, why now? > > > > > > > > > Rob, > > > > > > I have no personal issues with you, and I have never made any > > > attempts to destroy your name or reputation. We have never > spoken by > > > telephone and I know very little about you. In fact, I just > found > > > out today that you do not even have CML. It was always my > assumption > > > that you did. My mistake. > > > > > > My involvement with the group came as a result to a simple > question I > > > posted revolving around the topic of Gleevec and Grapefruit. > The > > > problems that happened after that made me an active participate > in > > > the group. I didn't like being insulted by asking a "newbie" > > > question. A moderator should have stepped in. It wasn't done. > > > > > > Lynn (Snickersunny) > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 21 > Date: Thu, 10 Mar 2005 18:23:51 -0800 (PST) > From: pat reynolds <[EMAIL PROTECTED]> > Subject: "TRYING TO PLEASE EVERYONE" > > Dear Friends....I'm thinking as I type this, "who > cares what I have to say?" But it's America, and I'm > going to express myself while I can....may lose that > right too before it's all over...BUT people, PLEASE! > This is crazy! This has totally gotten out of hand. We > forget what someone did for us years ago, > yesterday...it's what have you done for me lately? Rob > took his time, perhaps his money to provide us a place > of refuge for our fears, our worries, our not knowing > the unknown. My computer stays on 24/7 and I see that > Rob is online many hours of the day and night, I check > my email periodically out of the day, and also go to > the cml sites and log in throughout the day and I can > read something Rob posted and go back in 15 minutes > and see something else Rob has posted...he is full > time devoted to this group....doesn't that mean > anything to anyone? It did in the past...why not now? > I have a lot of empty time on my hands but I don't > spend it squabbling back and forth with someone on the > internet about something I disagree with. Some of you > complain about this and that, with how the group is > handled and what gets posted, things you don't want to > read, etc. well, I don't like having to read arguments > and that is all that is going on these days. Why don't > you guys argue in private...we all have acess to each > other's emails? I'm not personally mad at anyone, nor > am I going to get mad and say to hell with this > group...I'm not that easily run off. I love this group > and the people in it and I'm just trying to get > everyone to realize this is not necessary. As I've > said before, it is sweating the little things....we > have CML, all this other stuff is just little things > that don't even matter in the scheme of things. We > need each other and there is more people all the time > joining the group who need us. Let's not forget what > brought us all here together in the first place. > Things can't always be the way YOU want them...it's > life. Everything changes. I sure as hell don't want > CML but I'm stuck with it BUT I sure was glad to find > a group site where I could find other people who knew > what I was going through and had more knowledge about > it than me, and was willing to correspond with me > about it. > > Rob, I've thanked you before and I'm thanking you > again. I appreciate you starting the group and all the > time you've put in it. I'm not leaving...I am a member > of both sites. I see someone has started a new > group...I guess it will go ok for a while until > someone finds something to complain about. I hope you > will not let a few unpleased people run you off from > the group. "I DON'T KNOW THE KEY TO SUCCESS, BUT THE > KEY TO FAILURE IS TRYING TO PLEASE EVERYBODY"...just > remember, it can't be done. > > I love all of you and I pray for all of us everyday > concerning our health...now I'm praying for peace > among the group. Love, Peace & Hope to All, Pat > > > > > > __________________________________ > Do you Yahoo!? > Yahoo! Small Business - Try our new resources site! > http://smallbusiness.yahoo.com/resources/ > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 22 > Date: Fri, 11 Mar 2005 02:42:27 -0000 > From: "snickersunny" <[EMAIL PROTECTED]> > Subject: Re: The Grapefruit Question > > > Dear Dane, > > It was not my intention to bring this all back up again. I accepted > your apology and I truely thought that we had all this behind us > too. > > You and I had no ill will go back and forth with each other, and it > was a big misunderstanding on how words chosen don't always translate > well over the internet. I apologize as well for taking your words > personally. Looking back,, it is ironic how we can have worries about > things that just a few years earlier were never discussed. With that > being said, Nancy became involved in the discussion, and that is > where I get mixed up in this tangled web. > > Nancy had the best of intentions in helping me get an answer to my > post, but things got testy and emotions ran high. Obviously, she was > hoping that Rob would step in and give resolution and peace with the > problem that started but unfortunately, that did not happen. I'm > sorry that it all snowballed and escallated into a big online brawl > where lines were drawn in the sand and sides were chosen. That was > never the intention and is still not. Obviously, her the wounds are > not healed. I am sorry for that. > > My best wishes go out to you for a smooth recovery from your > transplant and I'm glad that you have kept the group informed about > your progress. "Hope" is what the group is all about. We are all > rowing the boat together in hopes that one day, we can all be well. > We are all watching your progress and proud of you for going down the > path that must have been a difficult decision to make. Everyone must > walk alone on this journey, but it sure helps to have supporters to > get you through the bumps. God Bless and get home to your family > soon! > > Sincerely, Lynn (Snickersunny) > > > > > > > > --- In [email protected], [EMAIL PROTECTED] wrote: > > > > Dear Lynne, > > > > I apologized to you for the newbie comment, with the explanation > > that the comment did not translate well in email form. The apology > > was sincere and immediate. Again, I was simply rejoicing in the > fact > > the here in the Gleevec era, we have to worry about things like > > Grapefruit. I was alluding to darker times on this list before > > these type of miracle drugs were available, that's all. > > > > I realize that the attempt at ironic humor was poorly written and > > did apologize for it when you first took offense to it way back > > when. There was no need for Rob to step in. You had even accepted > > the apology....so why this, why now? > > > > > > > > > > > > > > Rob, > > > > > > > > I have no personal issues with you, and I have never made any > > > > attempts to destroy your name or reputation. We have never > > spoken by > > > > telephone and I know very little about you. In fact, I just > > found > > > > out today that you do not even have CML. It was always my > > assumption > > > > that you did. My mistake. > > > > > > > > My involvement with the group came as a result to a simple > > question I > > > > posted revolving around the topic of Gleevec and Grapefruit. > > The > > > > problems that happened after that made me an active participate > > in > > > > the group. I didn't like being insulted by asking a "newbie" > > > > question. A moderator should have stepped in. It wasn't done. > > > > > > > > Lynn (Snickersunny) > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 23 > Date: Fri, 11 Mar 2005 02:48:08 -0000 > From: [EMAIL PROTECTED] > Subject: Re: The Grapefruit Question > > > Lynn, thanks for the clarification. I am so glad that we are on the > same page. > > A rose for you.... > > http://www.fototime.com/67243DB274A27B2/orig.jpg > > --- In [email protected], "snickersunny" <[EMAIL PROTECTED]> wrote: > > > > Dear Dane, > > > > It was not my intention to bring this all back up again. I > accepted > > your apology and I truely thought that we had all this behind us > > too. > > > > You and I had no ill will go back and forth with each other, and > it > > was a big misunderstanding on how words chosen don't always > translate > > well over the internet. I apologize as well for taking your words > > personally. Looking back,, it is ironic how we can have worries > about > > things that just a few years earlier were never discussed. With > that > > being said, Nancy became involved in the discussion, and that is > > where I get mixed up in this tangled web. > > > > Nancy had the best of intentions in helping me get an answer to my > > post, but things got testy and emotions ran high. Obviously, she > was > > hoping that Rob would step in and give resolution and peace with > the > > problem that started but unfortunately, that did not happen. I'm > > sorry that it all snowballed and escallated into a big online > brawl > > where lines were drawn in the sand and sides were chosen. That > was > > never the intention and is still not. Obviously, her the wounds > are > > not healed. I am sorry for that. > > > > My best wishes go out to you for a smooth recovery from your > > transplant and I'm glad that you have kept the group informed > about > > your progress. "Hope" is what the group is all about. We are all > > rowing the boat together in hopes that one day, we can all be > well. > > We are all watching your progress and proud of you for going down > the > > path that must have been a difficult decision to make. Everyone > must > > walk alone on this journey, but it sure helps to have supporters > to > > get you through the bumps. God Bless and get home to your family > > soon! > > > > Sincerely, Lynn (Snickersunny) > > > > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 24 > Date: Fri, 11 Mar 2005 02:54:17 -0000 > From: "snickersunny" <[EMAIL PROTECTED]> > Subject: Re: The Grapefruit Question > > > > Right back at you Dane! :-) Lynn > > > --- In [email protected], [EMAIL PROTECTED] wrote: > > > > Lynn, thanks for the clarification. I am so glad that we are on > the > > same page. > > > > A rose for you.... > > > > http://www.fototime.com/67243DB274A27B2/orig.jpg > > > > --- In [email protected], "snickersunny" <[EMAIL PROTECTED]> wrote: > > > > > > Dear Dane, > > > > > > It was not my intention to bring this all back up again. I > > accepted > > > your apology and I truely thought that we had all this behind us > > > too. > > > > > > You and I had no ill will go back and forth with each other, and > > it > > > was a big misunderstanding on how words chosen don't always > > translate > > > well over the internet. I apologize as well for taking your words > > > personally. Looking back,, it is ironic how we can have worries > > about > > > things that just a few years earlier were never discussed. With > > that > > > being said, Nancy became involved in the discussion, and that is > > > where I get mixed up in this tangled web. > > > > > > Nancy had the best of intentions in helping me get an answer to > my > > > post, but things got testy and emotions ran high. Obviously, she > > was > > > hoping that Rob would step in and give resolution and peace with > > the > > > problem that started but unfortunately, that did not happen. I'm > > > sorry that it all snowballed and escallated into a big online > > brawl > > > where lines were drawn in the sand and sides were chosen. That > > was > > > never the intention and is still not. Obviously, her the wounds > > are > > > not healed. I am sorry for that. > > > > > > My best wishes go out to you for a smooth recovery from your > > > transplant and I'm glad that you have kept the group informed > > about > > > your progress. "Hope" is what the group is all about. We are > all > > > rowing the boat together in hopes that one day, we can all be > > well. > > > We are all watching your progress and proud of you for going down > > the > > > path that must have been a difficult decision to make. Everyone > > must > > > walk alone on this journey, but it sure helps to have supporters > > to > > > get you through the bumps. God Bless and get home to your family > > > soon! > > > > > > Sincerely, Lynn (Snickersunny) > > > > > > > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 25 > Date: Thu, 10 Mar 2005 21:59:53 EST > From: [EMAIL PROTECTED] > Subject: Re: Get real,folks > > > In a message dated 3/10/2005 4:22:11 P.M. Pacific Standard Time, > [EMAIL PROTECTED] writes: > > I'm sitting here at my computer remembering that some of the people who were > most negative and controlling about Sandra Landels "political issues" are > the very same ones in the "group of six." You folks have to be kidding. > Standards of decency???? You are unhappy with a paid -for and smoothly run web > site dedicated to CML? You want to impose "standards of decency" on a group > of adults who have much BIGGER things to worry about. I don't know why Rob > would want to remain with this group but I laud him for doing it. I have > researched all the CML sites and I think this is the best one except for the > whiners and complainers who want to control free speech. And it was a really cheap > shot to mention that Rob doesn't have CML. I don't either but my son does. > Ooh,I have an idea--why don't all you unhappy folks start your own support > group. That's the ticket! Now,I'm really mad. Cynthia Bates Schaefer > > [Non-text portions of this message have been removed] > > > > You go Cynthia, I agree with you whole heartedly. > Jim Rodeghier > > > [Non-text portions of this message have been removed] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > > New! 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