Hi Rob,

I was referred to this group back in 2002 (after dx) and it has been a huge 
help to me especially when I was a newbie. I really admire the dedication that 
you have put into trying to help cancer patients. Your determination to not be 
cowed or silenced politically by bullies has been refreshing. As a "foreigner" 
It 
reminds me (again) that all Americans don't follow in lockstep with the group 
running your government now.   

I wasn't aware that a cohort of members had approached you offline to 
change the format of the lists or add moderators. I have met Zavie and 
Tracey personally and I can assure you they are decent individuals who 
would wish you no harm. I also have spoken many times offline with Nancy C. 
and John M and feel the same way about them. 

The fact that you have been stalked and been financially hurt in the process 
of running a cancer support group is reprehensible. I sincerely hope you get 
redress for your losses and whomever has harassed you is punished. 

Members of these lists initially come on for CML information, support and 
friendship. In time, some people spend so much time on these various lists 
that I would call it almost an addiction. That is part of what sparks these 
nasty 
exchanges from time to time. We should be living with our CML .. not living 
our CML. I believe Erin from Michigan said basically the same thing 
yesterday. The gleevec rage, grief and anger over having CML are all there 
too. I know, as there are days when I have experienced one or the other. 

Personally, I don't think people should take these lists so seriously. Look at 
them as a tool for support, information and hopefully friendship. I have been 
lucky enough to find all of those.

Things have to be put into perspective. We have Elizabeth Rees fighting for 
her life in a hospital in London, Dane and many others fighting to recover and 
be cured from BMT's. Those and our own fight with CML are what really 
matters. 

Best to all,
Wayne 
Toronto, Canada 





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