Dear Nancy,
Thanks for the update on Bob.  You're both in my thoughts and I'm sorry you've 
had to go through another scare and, for Bob, extreme discomfort.  

Thinking of you.
Love,
Susan L



-----Original Message-----
From: nancy wilhelm <[EMAIL PROTECTED]>
Sent: Mar 12, 2005 11:35 PM
To: [email protected]
Subject: Re: [CML] Bob Wilhelm's update/OT/Penny


Oh Penny, you are so right....support and love.  I'm afraid I was being a bit 
sarcastic!
Thanks for your good thoughts and prayers.  All are appreciated!
blessed be            nancy w

Penny Rivers <[EMAIL PROTECTED]> wrote:

Hi,

My prayers are with you and bob that everything goes well.  This is what this 
message board is here for.  Support and love!!!

Warm wishes from the Cayman Islands
Penny

nancy wilhelm <[EMAIL PROTECTED]> wrote:
Hi all,
Hope you all don't mind if I tell you about the past few weeks of Bob's life!  
I realize that this is not what has been going on here, but I feel that you all 
will be interested anyway.
One important thing that I want to tell you about is his essential 
thrombocytosis, high platelets.  Bob had had a stone removed from his bile duct 
in Jan., and his hemoglobin started to drop after that until Feb 21, at UCLA it 
was down to 7.1.  They gave him 2 units of blood there.  He then went back to 
the dr to check for bleeding from the stone removal, and none was found.  Then 
he got very sick, dehydrated, weak, fever, etc.  His local doctor admitted him 
to the local hospital right away and they did tests that seemed to indicate he 
had another large stone.  He was transferred by ambulance to Lancaster CA (70 
mi away) for another ERCP, which was done and no new stone was found, so it 
must have passed.  Meanwhile his hemo was down to 6.9 so they gave him 2 more 
units.  The next day he had his inflamed and enormous gall bladder removed and 
they gave him 2 more units!!  I was told by hemotologist and cardiologist in 
Lancaster that the loss of blood was from the ET.  There was no
blood leaking out anywhere, it was being destroyed in his system by the high 
platelets.  This has not been confirmed by Drs at UCLA yet, so we don't know 
this is actually the case.  But thought you all would want to know about it.
He will be going to UCLA on 3/21 for a BMB, etc.  He had a FISH and PCR on 
2/21, but I have not received the results yet.
Sorry this is so long, but at least it is on a different subject!!

love and hope to all                       blessed be         nancy w   
inyokern ca


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