Hi Nancy We are so pleased to hear Bob is doing so much better now and still pcru. Rich is still on hydrea, juggling dose each week in line with counts. Hammersmith's Ethics Committee is apparently prevaricating over the wording of the BMS trial documentation so has not started yet. Will be off to France if they don't get their act together by the end of this month. otherwise, Rich is feeling reasonably well, just getting a little anxious now. Love to you and Bob Annette xx
--- In [email protected], nancy wilhelm <[EMAIL PROTECTED]> wrote: > Hi Annette and Richard, > So good to hear from you. I've been away for so long I don't know what your current status is. Please bring me up to date when you have a chance. > Bob is doing much better. Eating well and walking some. Got his PCR and FISH report from Feb and he is still at ZERO on both. That is such a relief. But his platelets are going back up, I guess the new blood he got is gone now! > Yours and others prayers are what keep us going..........thank you so much. Take care. > blessed be nancy w > > nettee0 <[EMAIL PROTECTED]> wrote: > > Dear Nancy > I am so sorry to hear Bob is going through this ordeal and please > know he is in our prayers. > Love > Annette and Richard xx > UK > > > > --- In [email protected], nancy wilhelm <[EMAIL PROTECTED]> wrote: > > Hi all, > > Hope you all don't mind if I tell you about the past few weeks of > Bob's life! I realize that this is not what has been going on here, > but I feel that you all will be interested anyway. > > One important thing that I want to tell you about is his essential > thrombocytosis, high platelets. Bob had had a stone removed from > his bile duct in Jan., and his hemoglobin started to drop after that > until Feb 21, at UCLA it was down to 7.1. They gave him 2 units of > blood there. He then went back to the dr to check for bleeding from > the stone removal, and none was found. Then he got very sick, > dehydrated, weak, fever, etc. His local doctor admitted him to the > local hospital right away and they did tests that seemed to indicate > he had another large stone. He was transferred by ambulance to > Lancaster CA (70 mi away) for another ERCP, which was done and no > new stone was found, so it must have passed. Meanwhile his hemo was > down to 6.9 so they gave him 2 more units. The next day he had his > inflamed and enormous gall bladder removed and they gave him 2 more > units!! I was told by hemotologist and cardiologist in Lancaster > that the loss of blood was from the ET. There was no > > blood leaking out anywhere, it was being destroyed in his system > by the high platelets. This has not been confirmed by Drs at UCLA > yet, so we don't know this is actually the case. But thought you > all would want to know about it. > > He will be going to UCLA on 3/21 for a BMB, etc. He had a FISH > and PCR on 2/21, but I have not received the results yet. > > Sorry this is so long, but at least it is on a different subject!! > > > > love and hope to all blessed be > nancy w inyokern ca > > > > > > [Non-text portions of this message have been removed] > > > > > > New! 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