Rob, thank you so much for your response. I feel you are doing an exhausting 
job, and doing it great. Your site has been a great help to Al and I. I know 
the info I brought to the drs with us, has helped Al. I also feel, well know, 
the drs would of just gave him more and more chemo, in the so called effort to 
save his life. I want to say, some of us are so thankful you started this site. 
 Again, thanks and god bless,   Lynda and Al
Rob <[EMAIL PROTECTED]> wrote:Lynda,

I don't want you to be afraid to be post because of the fear of upsetting 
others. The problems this group had with certain people are out of their way 
now and they will not be a problem again.

After the dozens of posts that were made that disrupted the group and the 
nasty private emails that are being circulated around about me personally I 
think in the future it will be necessary to deal with problem users more 
quickly. I have always tried to be as lenient as possible and allow everyone 
an opportunity to speak and I realize now that it has been a mistake to try 
to accomodate those who intentionally plan to disrupt the group. If anyone 
has any problems with this group (or the Google group) or receives threats 
or nasty private emails from anyone in the group please let me know so that 
it can be dealt with quickly.

This group and the Google group both remain open and will continue to 
provide support and information.

Rob

----- Original Message ----- 
From: "Lynda Niemczyk" <[EMAIL PROTECTED]>
To: <[email protected]>
Sent: Monday, March 14, 2005 7:40 PM
Subject: Re: [CML] Re: ENOUGH!!! Right on Lynne, this hostility gave me a 
headache.


>
>
> Right on Lynne, I posted, to STOP IT it's giving me a headache. I had no 
> response, so maybe they will listen to you. I do not post much anymore, 
> you know that. One reason is that I am afraid to upset someone. I am only 
> a caregiver, as you know, but caregivers can get stressed out and worried 
> as much as the CMLr's. One reason Al doesn't read much on these sites is 
> that he doesn't want to be bothered with such arguments. Got to run and 
> clean out more emails. Love you, you are one of our best friends,  Lynda 
> and Al
>
> [EMAIL PROTECTED] wrote:Oh brother, I have really missed out on a lot of 
> things here, I  guess.  All
> I knew is that Rob was changing from Yahoo to Google.   Nothing else has
> caught my eye, as I have been only able to quickly scan emails  (689 of 
> them) and
> try to catch up...well, once again, are we at war or  what?  I don't know 
> what
> is going on (Don't think I WANT to) but I am going  to let the dust settle 
> and
> continue on as usual.
> Over the past five years on the CML groups, bickering has occurred
> frequently.  Groups have split and formed new groups.  I try to just  go 
> with the flow.
> Sometimes my feathers have been ruffled, but long ago I  chose not to 
> enter
> into any controversy or arguments that would harm my fragile  state of 
> health.
>
> If you would allow me, I would like to tell about what happened  to me
> recently.  I went to Belize to try to regain my health,  to  strengthen my 
> body and
> mind.  My goal was to stay in the sunshine, walk  everyday, exercise, eat
> well, and rest.  I figured no one down there would  cause me any stress 
> and I
> would be so far ahead of the game that by the time I  got back to the 
> States I
> would look/feel better and my doctor would be proud. I  would no longer 
> feel as
> though I am "dying."
> Well, after about a week something really awful happened to me, unexpected
> and traumatic.  My mother, who I do not see often, has apparently begun 
> some
> type of psychological sickness and has progressed very quickly from the 
> last
> time I saw her.  Being in Belize, she is not treated for whatever her
> condition is,  not medicated, and is pretty much left on her own to  wreak 
> havoc.  I
> was appalled and frightened.  My whole being was  threatened, traumatized, 
> and
> by the end of the week, lo and behold  my WBC counts were 21,000!
> What I am trying here to say is that if we allow ourselves to fall into
> situations that are unhealthy, relationships that are not good for us, 
> then our
> health is surely going to suffer.
>
> When I returned to the US, I was lucky to be viewing PBS and  Dr. 
> Christine
> Northrup was giving a lecture on Mother/Daughter  relationships and was so 
> glad
> that I was able to heal a bit from listening  to her wisdom. In any 
> situation
> that threatens our well-being, we do not have to  become "victims" unless 
> we
> want to be.
>
> I did not need to come here to my wonderful support groups and see 
> bickering
> on top of all of that befell me over the past few weeks. I look  forward 
> to
> the group posts as healing, helping, support.  When I see  my beloved CML
> fellows arguing, it makes me feel that the whole world has  gone crazy. 
> Please,
> Let's not bring this down.  Let's try and be  tolerant of one another, and
> realize that we who are sick with CML cannot AFFORD  any more sickness, on 
> top of
> what we are already dealing with.
>
> From experience with the support groups, I can tell the newer members that
> this too shall pass, and things will settle and things will go on.  I am 
> still
> amazed that even after 5 years I can still come here to the groups and 
> find
> out what I need to find, and see my CML family!!!
> "So, come on people, smile on your brother, everybody get together try to
> love one another right now." (Forget who sang that?????) - Lynne A.
>
>
> [Non-text portions of this message have been removed]
>
>
>
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> at http://cml.meetup.com
>
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> God bless and take care    Lynda and Al
>
>
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