Hi Dane, It's good to see you are doing so well. Mark is Day 169. He has been on 3-400mg tablets of Magnesium, 3x daily for a few months. His local onc just dropped it back to 1 tab 1x a day after I asked them to run a magnesium check. The local oncs just don't follow as closely as the Transplant Clinics do! Mark takes Immodium once a day also, and has for over 2 years now. Since starting Gleevec when diagnosed, it just never went away. He had a lull for a few weeks not too long ago from diarrhea, but it's back again. Not sure what's causing it. Overall, he is doing well. He definitely has some GVHD, but it's manageable on its own without the help of steroids right now. Good to see you so active. We were constantly getting lost in Seattle too! It was nice to have a break from home though and the comfort of that safety net of the Transplant Clinic. Hugs and Peace, Katrina
--- In [email protected], "Dane" <[EMAIL PROTECTED]> wrote: > Just a note to say I am now 64 days post transplant and feeling fine. They have me down to two days a week in the clinic, the other days on my own doing home transfusions which are a piece of cake. I am enjoying the freedom and doing a lot of exploring out in the countryside outside of Houston. I figure I'm safest away from the crowds and out in the country, so I spend a lot of time getting lost and then trying to find my way back home. which is something I've been doing ever since I moved to Texas. > > Had the privilege of meeting Hertz-Nurtle (Avis) today at the Rotary House for lunch. Such a vibrant, interesting woman with great true to life stories always on the tip of her tongue. She kept us spellbound at the table for well over an hour. Thank you Avis! > > My counts remain unchanged. Constantly low on magnesium, still trying to find a happy balance between doses of magnesium and immodium...not sure there is one. The only thing I am getting via IV is saline and magnesium supplements. I time my days and travels by distances between bathrooms, and the scariest thing I have to do is occasionally use a public bathroom. I must look pretty funny donning gloves and mask before entering a public bathroom as if I were a doctor entering an OR. I do get some strange looks from people. > > Slightly low on the hemogloben around 10 or 11 o the average, but that is where I was for most of my years on Gleevec. > > My second post BMT biopsy is scheduled for the 18th with the results coming around 10 days later. Until then it's watching out for kooties while I hurry up and wait. I do think I am getting another weekend furlough to go see my kids this weekend, so we are excited about that. > > Hope this note finds everyone doing well. > > Regards and Prayers, DT ------------------------ Yahoo! Groups Sponsor --------------------~--> In low income neighborhoods, 84% do not own computers. At Network for Good, help bridge the Digital Divide! http://us.click.yahoo.com/V_qgJD/3MnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
