Hi to all - You who have been around a while through all the side effects of my cousin, Dona, are about to hear a new one. She is a patient of Dr. Talpaz (4 years) and in Oct. 2003, she had to have an echocardiogram as he wanted every one of his patients to do so. Monday, she had a plain chest xray because of the lesions in her lungs that are being watched. Her family doctor got very excited as he looked at the films and actually began calling to her out in the waiting room. Seems since her last xray 6 months ago her heart has gone from normal to about 4 times the size. She has been in touch with Houston and is to stay on the Gleevec "momentarily' until Dr. T. sees the next confirmed report. She has an appt. tomorrow with a cardiologist who is wokring her in due to othe seriousness of this complication. For those who know Mary Beth at MDACC: she said that they had had this before, thus the order for each patient to have the echocardiogram. According to what I have found on the Web, only symptoms would be fatigue and swollen ankles. And that this is usually discovered upon having a chest xray for other reasons. This seems to me to be pretty scary as she has had fatigue for the whole 4 years and has the swollen ankles off and on, also. I will write tomorrow night if I know more. She is just wondering whether anyone has had any heart problems. Also to Dane - We are so happy for you. Best, Avis (Hertz Nurtle)
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