hello everyone,
I'm new to the group and even though you all seem
wonderful i wish i wasn't a part of it. My husband was diagnosed with
cml March '04 when he began to have pains in his left side.
Misdiagnosed with kidney stones for 2 wks. till a cat scan revealed a
hugh spleen.Wbc was 150k and peaked at 250k before it began to
subside.He started on Hydrea and Gleevec (400mg) immediately.He
achieved remission in about 6 months.We have been to Vanderbilt
several times and talked to Dr. Jagasia. He was very helpful in
explaining
things to us.My husbands siblings are not a match for a transplant
but
they are searching the registry. We are not sure if this is what we
want to do but it is nice to know your options. Karl is in cytogenic
remission per last bone marrow aspiration and is not doing too awful
bad with side effects. Dr. Jagasia has mentioned an autologenous
transplant. Do any of you know or have experience of this?
God Bless,
Stephanie
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