[CML] livia from slovakia

Thu, 16 Jun 2005 09:12:01 -0700

Hi everybody,

 

My name is Livia and I do not post very often but I read every single email I receive. 

Just a little bit about me. I was diagnosed in February and I am on Gleevec 600 mg. Sometimes they put me on 400 and after they change it to 600.  I do not experience many side effects. I am from Slovakia and I have been in the US for 1 year and 7 months. I got a good job, finally qualified for an apartment, started to study at the college and in 26 I received the worst info ever. I have CML !!! All my family except of my husband is back home. My husband doesn?t speak fluent English and also it is not easy for him to handle my disease. That?s why I would like to join a support group meetings in my area, which is Washington DC. I live in Vienna, Virginia.  So if anybody has some info, let me know please. Since I have no friends and family here and my husband is working long hours I would like to find some activities. (volunteering jobs, support groups). Have you any suggestions for me?

I do not know what to do. If to go back to my country or stay here. I miss my family and their support, my friends, peaceful and slower life over there, BUT there is not Gleevec. So far I know they are testing it.  So basically I can?t go home. I have never felt so powerless in my life. Young, full of ambitions, helping other with problems and now I feel like I can not help myself.

I also have a doctor who is not a specialist for CML. I am frustrated.  In order to change a doctor, I have to change my insurance, which is possible in January 2006.  I hate it so much !!! Are there any possible consultations with doctors who are specialists?

I am thinking about the future and I can?t help myself, I just can?t. Everybody says, do not worry about it, just live life from a day to day. Yes, but after I can not think about having a baby, about going back to my native country, and many other things.

Any help is appreciated. I also do not know what it is RDW. When they take my blood the only result which is a little bit high is RDW.  On Monday I have a bone morrow biopsy and I am scared. It is so uncomfortable and she wants to take also a piece of bone. I can?t sleep a week before I am supposed to have it. Some of you wrote some percentages and that you are in PCRU or CR? I do not know where I am and how my results are. My blood counts look fine though.

 I think it is enough for today.  I am sorry for mistakes and maybe I repeated some sentences as usually, but I am at work and a little bit frustrated today : )

Hugs and blessing to everybody,

Liv

 

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