Brenda,
Thanks for your message. Roth spots are small hemorrhages around the outer
edges of the retina and macula. Instead of having my eyes dilated, I opted
for a $29 Optomap test that takes a picture of the retina and macula. When my
eye doctor saw the spots she was quick to send me to my GP for a CBC.
Within a day, I received a call that my wbc was 20 times higher than normal.
Within a day, I was diagnosed. The whole experience is still a nightmare. I keep
wondering if one ever gets to the point where you're not afraid all the time and
find some level of peace.
I've learned the hard way about just eating a "snack" with the
Gleevec. I also found that I was actually drinking too much water and
depleting myself even more. I was pushing over 90 oz./day of water. Now,
I'm alternating juices etc. to keep myself in tact.
I hope with time things will level out and I'll feel better. One more
thing, what does PCRU stand for?
Take care,
Vicki
----- Original Message -----
Sent: Friday, July 01, 2005 11:53
AM
Subject: [CML] Re: A few questions from a
new member (Vicki)
Vicki,
What are roth spots? In the beginning the
fatigue is pretty hard,
betweent he stress of being dx'd, your counts
being off and adjusting
to the medicine your body and mind are worn
out. As time passes this
will improve. To fight of the general
fatigue I would suggest to to
some kind of exercising each day if you can,
even if it's only a brisk
walk. I never changed my diet but I will
tell you to make sure and
take your gleevec with a 'full' meal not a snack
and drink plenty of
water. This will help with diahrria and nausea
if you are proned to
it. I was fortunate that these two side effects
weren't a problem for
me. I hope you respond wonderfully to the
Gleevec and get to feeling
better soon. Take
Care!!
Brenda
gleevec 5/04
pcru 5/05
--- In
[email protected], "JEFF VICKI SCARBORO" <[EMAIL PROTECTED]>
wrote:
> Hi folks,
>
> I was diagnosed with CML 3 weeks
ago. My journey began with a routine
eye exam which showed "roth spots."
One of the five causes of roth
spots was leukemia. I am curious as to how
some of you were diagnosed.
>
> Also, since I'm new to the game,
I'd like to know if anyone can
suggest any dietary changes that might aid
the Gleevec. So far, I'm
really tired and bruise very easily. Is the
fatigue going to be a part
of my world or has anyone found ways to help
curve it?
>
> Thanks for any information you can
provide.
>
> Vicki
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