Wendy,

I'm sure you are struggling at this time. I know how scarry it is to hear this 
type of news. I don't have CML but my 30 year old son does. He is busy in med 
school and he and his wife say they don't have time to worry so I do the 
worrying for all three of us.  (they also have 3 children) He was diagnosed 
over 2 years ago.

This sight is a great place to find support and answers to your questions.  I 
have found such caring people who have been there when I have had down days and 
I'm sure you will find this type of support too.

One thing I can say is that I hear more and more positive things happening with 
CML and treatments. My son responded right away and that lasted for 2 years. 
Then he lost his response and they have increased his gleevec twice, since then 
and yet I can still see things that are positive in this type of cancer.

One thing is that the experts now say that CML is beginning to be considered a 
chronic disease, much like diabetes, and I think that is very postive. In 
addition, new drugs are in trials that are showing really good results and that 
too is positive.

What I guess I am trying to tell you is that this is a good place to come for 
support and that even though this is terrible news there is a bright spot on 
the horizon.  People with CML are leading active and productive lives and you 
can too. My son began medical school 3 months after diagnosis and we never 
thought that would happen but with gleevec his response was rapid and he 
continues to do well, even after his last blood tests haven't been too good.  

My thoughts and prayers are with you. Best of everything as you learn and 
adjust to this new world and all that it involves.  There are loving and caring 
people out here and we wish all of the best for you.

Best of luck

Penny M


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