In a message dated 7/11/2005 12:55:05 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes:
have bad pain from time to time and a constant pain all of the time.  I have found that OTC pain relievers work some time but I keep a perscription pain reliever with me at all times.  I have been told that I am having a severe reaction to the Gleevic and that what I experiance is not the norm.  I hope your husband finds releif.
Pain is my  middle name.  I have had this since 2003 and it is severe in nature. At first, I think only a few had this side effect. But since the past few years, I have been noticing more and more patients on Gleevec having bone/joint pain. I had to be put on the strongest pain reliever one can find, but it helps and that is a life saver for me. I could not do much of anything, and I was an extremely athletic, active person.  I never sat down. Now, all I do is sit and I hate it, but it is the price I find I have to pay to be alive.  It is listed as a legitimate side effect of Gleevec, but it is noteworthy that only a small percentile have the problem long-term and some even had to be taken off of Gleevec because of it.
I hope you can find something to control the pain. One should not have to live like that without comfort of some kind. I tried everything before going on the meds, and I still do because I just want some relief!  I hope you can benefit from others' experience. - Lynne A.


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