All these symptoms are pretty common among us cml'ers on Gleevec or not on
Gleevec.
I was diagnosed in May of 2000 and immediately put on Hydrea, Then
interferon and ARC for one year until Gleevec approval.
Needless to say the side affects of Gleevec for me are minimal when
comparing to Interferon and ARC. Yet they do exist... as most of us who had
the experience of using interferon and ARC & Now Gleevec know.
After almost 3 yrs and 10 months on Gleevec I finally decided to start an
exercise regime of my own and I added Potassium, Magnesium, and Calcium
supplements to my diet with approval from both my primary Oncologist and
National Center Oncologist.
The approval from them on the supplements was simply if I did not feel any
positive affects from these within one month to stop.
It has been 5 months now and I can honestly say that I haven't felt this
good in the last 6 years.... I sometimes spend about 12 hours a day
gardening carrying 40lb bags of mulch and soil all day long with out any
pain. Oh sure I get some muscle soreness but I contribute it to no pain no
gain.
My weight was at 146 and now it's at 135 from the exercise and healthier
diet. I have not shed many pounds but I have lost about 6 inches in my waist
which makes me feel fabulous at 40! I really don't have a weight issue any
way with the exception of fat in unwanted areas.
My concentration level has increased tremendously and I am able to be
productive at work.
I do not drink sodas or any soft drinks and have not for about 2 years - but
I do drink about 60 ounces of water a day.
And for those who do not like the taste of plain water as I do not - I buy
flavored water call Fruit 2.0 by the case. It is sweetened with just a bit
of Splenda.
I guess I just wanted to share with you all the benefits of my lifestyle
habits and how it helps with the side affects of Gleevec & CML.
I almost don't feel as if I leukemia, but subconsciously I know that I do
and I must continue to keep myself as healthy as possible mentally and
physically.
Some I know cannot have potassium if they have nay type of heart conditions
so please consult with your doctors before doing any of the above.
By the way, if anyone has any suggestions on any good starter yoga CD's, I
would appreciate the recommendations.
Peace & love to all,
Lisa Martinez (Tampa Fl)
Dx 5-2000
Interferon, ARC , hydrea
6-2001 Gleevec 400 mgs
8-2001 PCRU
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