Dear CML group members, I haven't written much in regards to Tom's transplant. He is now at day 95 and on the upswing. I am not expecting to leave Minneapolis by day 100 (Aug. 13) but probably shortly thereafter. Tom's hundredth day will be exactly one year after he was diagnosed with CML (Friday the 13th - who could forget). Tom's complications from the transplant - graft vs host of the skin and liver (both gone now), CMV (cytomegalovirus - almost gone now), ganciclovir for the CMV which knocked his white cell count down to .5, prednisone induced diabetes, and he still hasn't finished all his homework. Good things that happened with the transplant - graft vs host disease means graft vs leukemia effect, no fevers since original discharge from the hospital (day 28), gaining LOTS of medical/medicine knowledge, and I got to spend 95 days with my son - priceless. Right now we are waiting for Tom's WBC and platelets to rebound now that he is on foscarnet for the CMV. The counts have slowly climbed. He stopped receiving growth factor shots to boost his counts so there has been a slight dip in the WBC (3.7) and platelet infusions almost every other day.
I am constantly reminded how blessed I am that Tom has had a relatively smooth journey so far. University of Minnesota Children's Hospital transplant unit is almost always full. We have gotten to know many families whose children have had very rough journeys. To read more about Tom's journey - go to: http://www.caringbridge.org/wi/tomneddo Thanks for all your past support. It's been an important part of this journey, Barb Neddo, Eagle River, WI Mom to Tom, 16, dx CML 8/13/04 MUD BMT 05/05/05, 100 days coming up on 8/13/05 ------------------------ Yahoo! Groups Sponsor --------------------~--> <font face=arial size=-1><a href="http://us.ard.yahoo.com/SIG=12kijj7t8/M=362339.6886522.7841160.1589681/D=grphealth/S=1705061628:TM/Y=YAHOO/EXP=1123561409/A=2894631/R=0/SIG=10pkrq6ru/*http://www.drugfree.org";>Need Help? Get Help! Tools and Strategies for Healthy Drug-Free Living</a>.</font> --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
