It is good to hear you had a good time.
 
Rob
----- Original Message -----
From: marcon
Sent: Sunday, August 21, 2005 10:34 PM
Subject: [CML] BMT Cruise '05

Dear All---July 9th was the 6th annual BMT Cruise on the Hudson with buffet
lunch & dj. Sponsors: my Dr. Michael Schuster, NY Presby. Hospital & Amgen.
This year we were on a bigger boat! Patients were given thermoses--stainless
steel, very nice--stamped with 'NY Pres. Hospital/BMT Program.' Good food,
fun music, drs. & nurses & patients & their guests all dancing & celebrating
everyone's good health.

I attended with my new friend Priscilla. She's doing great on the BMS trial
at MD Anderson. We met up with my friend Eleanor, a friend I made 5 yrs. ago
on the 1st cruise we both attended. Past illness is the common denominator.
When you meet new people you exchange names & then ask what their connection
is to the cruise. So everyone swaps stories & then just visits like normal
folks---which is what we've become.

As he did last year, Dr. Schuster introduced 3 people who had successful
transplants----each a remarkable story. A young woman befriended another bmt
patient & supported him by being an example of coming through the tough
times. Both spoke of their experiences & shared their gratitude for each
other, the drs., nurses & other support staff.

Most remarkable was the story of the young man(with AML) who is a triplet.
He has an identical twin---and a fraternal twin!! The identical twin was of
course a match---and so was the fraternal twin!!! It is thrilling to hear
the stories & see the smiles.

Expected Victoria & Cathy & Jeff Kramer to be on board. So it was a bit
disappointing that they couldn't make it. Hope they'll be there next year.
It's always a joy to make more room at the table.

Know that life can be good again. It may not be easy & it may take time. But
for most of us, it will happen.

Best regards to all,

Ruth Marcon dx March '00; sct July '00; Gleevec Nov.'00; remission Sept. '01






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