Brenda, Thanks for the response. I actually had a rash prior to diagnosis (it wasn't related). Sorry for the confusion. My wbc (at it's lowest point) was 2.1. It is now at 4.4. I just hoped to be at the standard 400 mg. dose. Maybe 300 mg is what will work for me. I guess time will tell. I live about 30 miles outside of St. Louis, MO and most of my dr.'s are there. Does anyone know of a good dr. in St. Louis?
Jennifer --- In [email protected], "Brenda Morelli" <[EMAIL PROTECTED]> wrote: > Welcome Jennifer, > > Rash is a common side effect in Gleevec, the minimum starting dosage is > 400mg for chronic phase patients so that could be an issue if you can't > take it. However, a lot of times the docs will have you take a > vacation from the gleevec, put you on medicine for the rash and then re- > start you. How low did your WBC go? In the beginning mine went down > to 2.1 and then slowly went back up. Most folks do fine the second > time around and have no other issues, others just continue to have > issues and must look at other treatment options. Keep us posted on how > your doing and feel free to ask any questions. > Brenda Morelli (43) > dx 5/04 > pcru 5/05 > > > > --- In [email protected], "jenniferabosse" <[EMAIL PROTECTED]> > wrote: > > Hi, my name is Jennifer and I was diagnosed on May 2, 2005 after > having > > the flu/rash and going in for routine blood work. My wbc were 31,000 > > at dx and got as high as 41,000 before starting Gleevec. My wbc at > my > > last appt. was 4,400. As I have read a lot of information on cml and > > gleevec, it seems as if the standard dose is 400mg, but that a lot > of > > people are taking 600 or 800mg. I am currently only taking 300mg. I > > started out at 400mg, but have been up and down on dosage all summer > > due to my white counts being too low. Apparently I was having > > myelosuppression from the gleevec. I am so new to this and just feel > > like maybe I am not getting all of the correct info. Am also in the > > process of finding a new dr. Any insight would help. Thanks!! ------------------------ Yahoo! Groups Sponsor --------------------~--> Ever feel sad or cry for no reason at all? Depression. Narrated by Kate Hudson. http://us.click.yahoo.com/rL1caD/ubOLAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
