Welcome to the club. I'm sorry to hear that you qualify for our little elite group!
 
Your initial progress sounds encouraging and typical. Pretty soon you will be taken off of the Hydroxyurea and  Allopurinol as those will no longer be needed. Hopefully, you will be like most of us who are able to stay on Gleevec alone. I've been on Gleevec for 2 1/2 years now with no sign of the CML in my BMB or PCR tests. You have taken a good step to join this group and inform yourself about your disease and your options. One lesson most of us have learned is that, even with good doctors, every patient needs to be proactive in his/her treatment.
 
Ask any questions you might have and I'm sure someone will answer.
 
With best wishes,
Richard Troxel
Age 61  dx 2/2003  IM 3/2003 PCRU 9/2004
 
-------Original Message-------
 
Date: 10/16/05 19:10:01
Subject: [CML] Newbie introduction - Alicia
 
Hey all,
I am only reading posts on the group site right now. I am pretty
busy trying to keep awake and educated and keeping up with real life
but I wanted to post since I just joined.
I am a 29 year old woman. I was diagnosed 1 1/2 weeks ago with
CML. My WBC was 250,000 at diagnosis and 183,000 one week later.
My spleen was 18 inches below my lungs at diagnosis and 12 inches
one week later. I had 2 blasts at diagnosis and none one week
later. I am on Hydroxyurea 500 mg 2 caps 2xdaily, gleevec 400 mg 1
cap 1xdaily and Allopurinol, 300 mb 1 cap 1xdaily. I have one son,
20 months old and a loving husband.
Thank you,
Alicia




 
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