Just want to welcome the newbies to our group. I feel
bad in saying welcome, I'm so sorry you or a loved one
has gotten CML, but welcome to a wonderful place to be
if you do have it. This group has some of the most
tender hearted, want to help, kind of people. I have
had CML for soon to be 2 years, yes I have my 2 year
anniversary coming up....planning a day of
celebration. I call the day I was diagnosed my
anniversary but I know now in hindsight I had had it
quite some time before being told by a doctor. I was
too stubborn to go to the doctor, but anyway....as I
tell everyone in the group, please email me privately
if I can be of help to you, I consider myself still
relatively new to all this, but I have learned
mountains of information, talked with, emailed so many
wonderful people in the past 2 years. These people
have really helped me. They will answer your questions
to the best of their knowledge, no question is a
stupid question, someone somewhere will be able to
give you an answer or at least point you in the
direction to get it. You can vent your feelings, cry
to someone...talk to someone who knows "exactly" what
you or your loved one is going through. Try us....We
Work! Glad you found us.
As for myself, suffering with what ER and primary care
physicians think is gall stones. I go for an
ultrasound of my gallbladder on Wednesday. I've been
hurting in both sides, at times bent over double, just
in a ring around my back, but both sides are hurting.
They seem to think I am having gallstone attacks. Boy
is this fun? I was hurting the other night so bad that
I finally gave in and went to the ER. I didn't want to
go cuz it reminded me of the time I went some 2 years
ago and was told I have CML. I feared it would be
something else serious or as serious as the CML. I did
go about 2 months ago with chest pain...Gosh that
night I thought I was having a heart attack, felt like
a huge elephant was sitting on it but ER doctor tried
to tell me it was a panic attack, that my heart was
fine according to EKG and xrays. Well, I have panic
attacks quite regular as a matter of fact, and it
wasn't a panic attack. Now my primary physician says
it was probably a symptom of the gallstones at that
time. Have you ever heard of Murphy's Law? It was
written and applied for ME. Ha!
I hit 40 and my body, my life started going downhill
really fast. Actually, I am a firm believer in the
saying "what goes around comes around" or "you reap
what you sow". I am paying a debt now for all the
worry I caused my mother when I was a teenager, for
every time my husband told me he was hurting and I
didn't believe him. My husband was about my age when
we met some 15 years ago, and he's fell apart over the
years, but at the time I couldn't understand how
someone could be sick, or hurting every minute of the
day, hurting as soon as they get out of bed and let's
just say, I'm shameful to say I wasn't a very good
supporter for him. I was working 2 jobs most days, 12
to 16 hours a day plus an hour of commute getting
there, he was constantly sick or in pain (at the
emergency room or doctor's office, or coming out of
surgery (7) times) I had 2 wonderful children or at
least I thought I did until they hit adolescence and
OMG, they were strangers to me, and often felt like
enemies....Whew! (Makes me tired thinking of it) and a
70 something year old mother to care for. I want to
add that my husband has been a wonderful supporter,
with me every step of the way (-6 months)helps me with
my mother, housework, cooking, laundry, everything. I
also want to clarify that I did support my husband
through his times of illness, but about 2 weeks out of
the month I was a bitch about certain things, and I
was over-tired and I did get so tired of taking him to
the doctor and ER. I was wrong. You can't understand
someone else's pain until you suffer with it yourself.
Plain and simple and human.
Anyway, the most important thing is all family members
are still alive, not all well, but we survived it,
we're still together and thats all I've ever prayed
for. I've come too far to turn back now...it's onward
and forward. I don't want to miss the dance...I hope
you dance.
Love, Peace, Hope & Prayers,
Pat
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