I just want to share this with you, maybe someone else has already.
CMLsupport.com has lots of info. I got me a notebook and it is devoted
to everything CML. I wrote down definitions of words such as BMA, BMB,
fish, etc. I also get a copy of my tests which include PCR, WBC, RBC,
etc. I also wrote down side effects to expect from the Gleevec and
then I wrote down the ones I experienced. I also have written down all
my meds and what each one is for. I was terrified and any info I could
find was enpowerment for me. CML is now a treatable disease just like
diabetes or high blood pressure. We have much to be thankful for the
introduction of Gleevec. Thank God for Dr. Brian Druker who designed
the drug. In spite of it's side effects, it is still not as bad as the
traditional intravenous chemo. My notebook also has written details of
everything I've experienced whether it be physical or emotional
symptoms. This notebook has been my theraphy, so to speak. There is so
much to this disease and all the termonlogy. Just a suggestion that I
hope will help.
Love, Peace, Hope & Prayers, Pat





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