Dear Cheryl, 
Thank you for sharing your anniversary story with us and thank you for being
you! 
You have been an absolute blessing to all of us. And alltough none of like
having CML I am sure you agree that through it we have found in ourselves
many wonderful purposes that we had no idea would ever exist. 
Congratulations on your 5 year mark and May God continue to bless you for
many years to come! 

Lisa Martinez  
Dx 5-2000 
Hydrea/interferon/arc
6-2001 400 mgs gleevec 
8-2001 pcru 
 

Message: 2         
   Date: Thu, 24 Nov 2005 10:11:19 -0500
   From: "Cheryl-Anne Simoneau" <[EMAIL PROTECTED]>
Subject: Happy Thanksgiving and a celebration of my 5th anniversary of
Diagnosis

Hello All,
 
Today marks my 5th anniversary of diagnosis with CML.  Much like today, I
greeted that day five years ago with anticipation of the day's celebration
even though I was not feeling well.  A side trip to the hospital for a
totally un-related event led to a not so routine blood test where my world
collided with cancer, leukemia, and more specifically CML.  In many ways,
being diagnosed on Thanksgiving was a blessing in disguise. I was reminded
to be thankful and grateful that although this diagnosis was probably
inevitable (I had worked for many years as a radiology/nuclear medicine
sales rep) I had the good fortune to find myself in good care at the McGill
University Health Centre here in Montreal (I am an American living in
Canada) and with a top doctor in Canada, Dr. Pierre Laneuville.
 
Much in my life has changed, how could it not?  In the early days, I thought
I would not want to be vocal about CML and life with cancer in general.
After loosing my job because of CML (small time employers were worried about
the cost of this drug and the impact on their modest health care plan), the
subsequent law suit (which not surprisingly I won, but for me it wasn't
about the money, it was about the principle) - well let's just say it is a
woman's prerogative to change her mind!
 
I started posting to Rob's International CML list on my second anniversary
of diagnosis and was a steady member here up until the last big melt down in
March.  I continue to read this list and offer support where I can, and I
thank Rob  for keeping this legacy list, although it is somewhat fragmented,
alive and kicking.  It saddens me that our community that was once so
strong, has become so fragmented.  This list was where Suzan McNamara
launched her petition which helped many of us have faster access to Gleevec.
This list has been the place where the most CMLers have come to find
information on trials and new drug development.  Welcome to the newcomers on
this list and long may you and we all post here - politics be dammed!
 
I hope you all continue to enjoy this list and find time to peruse the
archives.  You will see the how the miracle of new drug development has had
a positive impact on the quality of life while helping us all to live
longer.
 
Today, while I have recently gone back to work full time, I do whatever I
can to help other CML patients by organizing information sessions, helping
people find doctors, access to drugs and sometimes just hugging and
handholding when times get tense.  So, while I do not post much I am still
very active in this community.
 
Stay tuned, in a very short while there will be an announcement of the
creation of an organization totally dedicated to support, educate and
advocate on the behalf of all CML patients.  It's been a lot of work but it
has been lots of fun!
 
Blessings and warm wishes of peace love, gratitude and health - may we all
be happy and healthy!
 
Cheryl-Anne   
 


[This message contained attachments]



________________________________________________________________________
________________________________________________________________________

 
 
Lisa Martinez 
Avatel Technologies 
National Account Manager 
1-866-835-2062 x 1015 
 






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