Hello To everyone,
        I hope all had a wonderful Thanksgiving!
The day after thanksgiving I had gone to my scheduled appointment with Dr Ostrow, whom lately seems rather crabby. I didnt ask him any questions as I just wanted to get out of there. He was supposed to call me later in the eveing to confirm my sisters HLA blood type results to see if she would be a possible future donor for a BMT. When i first started going to Dr Ostrow my WBC were in the 19,000's and over the past few months have gone down into the 9,000's which is good correct? My RBC is normal. Does this mean Im in remission? If so how will I know if I'll stay in range?And why would my doctor want to raise the Gleevec from 400 mg to 6-800 mg? Will my Dr eventually take me off the Gleevec to see if my WBC stay where they need to be?
Also being on Gleevec, will this keep me out of the Accelerated and Blast phase? Now that my WBC is in the 9,000's would it make any sence to concider a BMT?Before my last appointment to sho the 9,000's range my Dr as well as a second opinion Dr stated a BMT is better to do when young rather than later in life, though also said there would be no rush at this time to do a BMT that a BMT would be something I needed to do more research on and that they wouldnt push me into something I wasnt comfortable with. Also even though I was recently dx with cml. My WBC was in the 26,000's range in 96 or 97, though when I went to Dr Ostrow in August this year it was in the 19,000's, 1. Would I have had the CML all this time? 2. How could my WBC drop since 96 or 97 not being on any medication? Sorry for all the questions, Im just rather confused.
 
Jamie from NY
Dx August 2005
Gleevec 400 mg
 


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