Hi Folks, My name is Gail Vardy and I am Megan's Mother in Law. She is a gem! My son (Scott) and Meg have been a tower of strength for me over the last few months since we started to suspect that there was something more going on. I have a condition called Chronic Inflammatory Demylinating Polyradiculoneurophy (CIDP)/ Recurrent Guilliane Barre which was diagnosed in 1997. It was initially controlled with 4 weekly infusions of intragam (Immunoglobulin) until I became allergic to at the beginning of 2004. After trying Imuran I was put onto Cyclosporin for 15 months. Being on that drug meant that I had to have a blood test every month. However my husband became very ill and died in March and I stopped taking care of myself whilst I took care of him. By the time I got back to the doctor in June 2005 my blood test results showed raised white cell, platelet, neutrophil and basophil counts. But it was not until September and two more blood tests later that the pathologist put two and two together and came up with myloprolific disease and in November suggested CML. Tassie does not a a proloferation of specialists - 1 haemotologist with a clinical orientation and 1 (soon to be none) neurologists so it took a few more weeks to get to see someone who could diagnose and treat.
Well as of today I am now receiving Glivec. I picked it up at 9.30 and then went to Scott and Meg's place to take the first one with a cup of tea. It was like having a champagne!! I work part time as a speech and language pathologist in early intervention with children for 15 months to 5 years. I am currently on sick leave as I could not cope with the fatigue, risk of infection and I now have no treatment for the CIDP so am slowly (Very slowly thank God) going backwards in mobility. I have a 15 year old daughter who is still trying to cope with the death of her Dad. So we recently made contact with Canteen and the Leukemia Support foundation. I would strongly recommend the support that they offer. Having not had help for Teala when my husband was dying meant that there was a lot of stress on her friends who did the best they could for her. Canteen now provides support for the children of cancer sufferers. I am so thankful and this support has been the sort of support that she has accepted and embrased. Enough for now. We live in Hobart Tasmania - next stop Macquarie Island and the Antartic. Unlike all the rest of you I don't Feel the cold but have the hot sweats all the time. It's like going through menopause again. This disease has to be effecting temperature control! In Love and Peace Gail Vardy ------------------------ Yahoo! Groups Sponsor --------------------~--> Help save the life of a child. Support St. Jude Children's Research Hospital. http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
