Hello Sue, Don't get discouraged. I would suggest you ask your doctor to check your hemaglobin level. My levels went quite low after a few months on Gleevec. He may be able to prescribe something for it. Other than that, you may find this hard to believe, but I find that working out at the gym - even though I would rather go take a nap, helps me to break through the fatigue you are describing. It seems wierd, here we are so tired and the one thing that really helps is exercise.
I am starting my third year on Gleevec after going through 18 months of interferon. I really cannot say that any of it has been too unpleasant and I have been able to keep relatively busy. I work full time, go to the gym, downhill ski, and organize meetings for other CML patients. Plus keep busy with a bunch of other hobbies. At first it was difficult to find the right pace, but as time goes by it does get a bit easier. I am undetectable by Q RT PCR, and I must admit that every once in while I take a break from Gleevec, much against the wishes of my doctor. I have been doing this for 2 years now, and I have been able to keep my PCRU status, although I wouldn't suggest this to anyone and it is rather risky. I'd rather if anything bad were to happen because of a break, that it only happened to me. I would feel quite bad if anyone were to really harm themselves, so I am not advocating this for anyone. Talk to your doctor and see what he/she might suggest for your fatigue. Best of luck and hang in there, Cheryl-Anne --- In [email protected], sue titus <[EMAIL PROTECTED]> wrote: > > Hi, I was diagonsoed in Oct. of 05 and always worked full time and was quite active. I am finding that I now have NO energy on 400 mg of Gleevec. Is this what most of you experience? I can't seem to get through a full work day without collapsing when I get home. I don't think I can manage the full time job anymore and it is quite discouraging. > Sue T. > > > --------------------------------- > Yahoo! DSL Something to write home about. Just $16.99/mo. or less > New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
