I am on 800 mg and I will be 29 next week. I have been on 800 mg for about a year and a half and my counts are always low....just goes with my remission which I am thankful for. I occasionally get Aranesp shots to help out, but i am in the low range for the most part all the time...I think this just goes with the territory.
As long as your docs say it is ok, I would go with them-
From: "sheila" <[EMAIL PROTECTED]>
Reply-To: [email protected]
To: "CMLHope" <[email protected]>
Subject: [CMLHope] Re: Gleevec Dosage
Date: Thu, 06 Apr 2006 17:50:43 -0700
>
>I am speaking from experience here. I was diagnosed in August 2005
>shortly after my 37th birthday. My white count was high, I was anemic
>and my spleen was pretty big (23cm) according to the docs. I went on
>400 mgs of gleevec and within 2 weeks all was almost "normal" then the
>3rd week came my white count and anc count "crashed". I was taken off
>the med until the counts recovered this took about 3 weeks then I went
>back on again and after a couple of weeks the same thing happened this
>went on for quiet some time on again and off again. In December I had
>been off the med for almost a month and was starting to go a little
>crazy(mentally) so he put me back on the med taking 400 mgs every other
>day. I did this up until 3 weeks ago. My counts were coming back up
>slowly and my platelets were up over a million so my local onc got
>nervous and called my Mayo doc which I was scheduled to go back and see
>just for a check up at the end of March anyways and they sent a kit for
>a blood draw so they could repeat a FISH test. Well, the FISH showed
>that my leukemia cells were at 20% up from 3.8%. I had to have another
>very very painful biopsy done. Mayo figured the increase was because
>of the med dosing. They don't think that I failed the med because I
>wasn't on the proper dose. So I am now back on 400 mgs every day and
>am in no way to stop taking that dose. If my anc gets to 500 or below
>I will then start the nuepogen (SP??) shots to try to bring the counts
>back up. Mayo said that I might just have to live with low counts,
>some people do. They also said that it is a very common problem. So I
>go every week for blood work and they keep a close eye on me. So right
>now I'm just "waiting" around to see what happens to make sure that I
>will respond to the med again which I'm pretty sure that I am because
>my platelets are almost in normal range again. Mayo said that was the
>thing to watch for. If they came down it means the med is working. So
>now that I've rambled on, in my opinion I would not reduce the dose
>because of what happened to me. Take care!
>
>Sheila
>
>
>
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