YAHOOO!!! YIPPEEE!!!
Number 974 in the Zero Club
Zavie
On 6/6/06, Renee <[EMAIL PROTECTED]> wrote:
I am 41 years old. I was diagnosed with CML 2 years ago. In 2004, the
cytogenetics test was positive for 19 of 20 cells and the FISH test was
positve for 200 of 200 cells. I went on 400mg of Gleevec daily and
after 6 months increased to 600mg daily.
I have a lot of the same side effects as others: nausea, diarrhea,
muscle cramps, water retention, loss of appetite, some changes in my
complexion and hair, lack of energy, acid reflux, etc...
In 2005, when I had my 2nd bone marrow biopsy, my cytogenetics test
shows 0 of 20, FISH showed 0 of 200, and PCR showed 0 of 10,000 cells
positive. So after one year on Gleevec, I had what my doctor called an
"excellent" remission of the CML. I have to agree after reading some
of the other posts. I feel very fortunate to have responded so well
to Gleevec.
My next bone marrow biopsy is coming up soon - June 22, 2006.
My oncologist has not said anything about testing any of my siblings
(for compatibility) for possible bone marrow transplant. In the back
of my mind, I keep wondering when I will stop responding to the Gleevec
or when my doctor is going to start pressing me toward getting the bone
marrow transplant.
67 Shoreham Avenue
Ottawa, Canada, dxd AUG/99
INF OCT/99 to FEB/00, CHF
No meds FEB/00 to JAN/01
Gleevec since MAR/27/01 (400 mg)
CCR SEP/01. #102 in Zero Club
PCRU 5/02 at RVH
2.8 log reduction Sep/05
3.0 log reduction Jan/06
e-mail: [EMAIL PROTECTED]
Tel: 613-726-1117
Fax: 309-296-0807
Cell: 613-202-0204
Yahoo ID: zaviem
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- [CMLHope] Re: Hi everyone! Zavie Miller
