Just an update on my cousin Dona's last echocardiogram. As I posted a while back, Dr. Talpaz required all his patients too have an echocardiogram. I thought 18 months ago, but Dona checked and it was two years ago. She has some fluid around her heart, but unlike the time she had one lung almost filled with fluidd, there is no medication to eliminate it. When it gets to a certain level, they will remove it with a needle or somesuch. The other fluid was reduced with medication. Since the heart fluid level was the same as 4 months ago, she will now have to repeat it at 6 month intervals. Whether her leg and hip pain are Gleevec or not, her visit this week to her ortho Dr. netted the same comment. There is no help for her and she was advised to sell her car since she will never be able to drive it; she was also advised to forget ever walking again. I am urging her to get a second opinion but she keeps insisting this Dr. is the best in Tucson. I'm sure she will have to get off the study at MDACC, as her next appt, is October. This pain hit just a few days before I flew to Tucson on my regular trip to help her to Houston. (April) Avis Dona dx January 2001 Clinical trial MDACC April 2001 CCR Oct. 2001 (400 mg Gleevec) Still not absolute PCR zero Zavie's list #141
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