well, I can only share Terry's experience.   He was having heart palpitations in mid February & was admitted to the hospital.   Luckily, his heart seems fine & they even did a vein scan on his legs, etc.   However, this was basically the last straw of side effects that were basically going to kill him before the cancer did    They took Terry off Gleevec for 2 months while trying to decide what to do.   He was able to get on the BMS trial, which is still continuing to this point.
 
Terry has had a much better quality of life since starting Dasatinib.   However, now other smaller side effects are starting to happen.  He still has the shooting leg & arm pains, but we don't know how much of that is the cancer, versus Gleevec leftover issues.   All his other "getting older" issues become more pronounced.  He had pink eye & an ingrown toenail that had to be cut out this week.   His glucose is hovering at 98.....he can't drop all the water weight & such that was gained since Christmas, which raises his blood pressure, and of course, is hard on feet & knees to carry the extra weight.
 
fun fun!!!   But he is still alive!!   Best part is that Terry has worked fulltime the past 2 months...that is a miracle!!
 
Lora

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