Greetings Everyone, Just wanted to let everyone know I'm still hangin' on, just don't post like I used to. Just trying to enjoy the summer as much as I can which has been damn near impossible with the high humidity we have where I live. We had a garden and I enjoyed putting up the veggies. I manged to get to go swimming on some kinda cloudy days where I didn't scorch. I've taken my pretend grand babies to the creek several late afternoons and my hubby and I went fishing a couple of times. Due to the COPD, I really have trouble tolerating the heat. Last weekend Jim and I went out to a local lounge and had dinner and enjoyed the music of Travis Wammack. I'm sure someone in the group knows him. He was band director for Little Richard's band for about 10 years. He was studio musician for all the performers of Fame, played on Aretha, Percy Sledge, Billy Ocean, Wayne Newton, Tom Jones, Paul Anka and so many more artists over the years. He is known as the fastest guitar player of the south. He was so good. My husband Jim writes lyrcis and has for 40 years and could never really get anyone to take the time to even look at them.....well Travis has his own publishing company and he and Jim are getting together the second week of Sept. so we are really excited about this. It's a shot in the dark but who knows.
My last visit at Vanderbilt brought good news. My numbers are at the lowest they've been in a year .0073. I have finally gained a little weight, the lowest I got down to was 109lbs and now I weigh 125lbs. At least I don't look anoxeria anymore. I was so tired of people not recognizing me and commenting how they didn't recognize me because I had lost so much weight. My appetite has increased some but I too have been trying to eat fattening foods when I do eat. I go through a half a gallon of ice cream in about 3 days. I'm still battling the side effects but up to 600mg now but able to tolerate it. I had wanted to try the new drug just to be able to live a normal life as the side effects were beating me down but I've decided after this long to stick with the Gleevec and should it fail in the future, I have something to fall back on. I'm also going through menopause and having to take hormones which has given me some new side effects to deal with but I can honestly say I feel more like myself than I have since the CML came into my life. My eyes still swell and are all gummed up when I get up in the mornings...and my vision is on and off again blurry..I'm still fighting the muscle cramps even though I take calcium and muscle relaxants. I haven't had one in my tongue yet...that sounds terribly painful but I've had them just about everywhere, they usually hit me in my sleep when I'm turning over and driving they hit me in the arch of my foot for some reason. That is really painful and most times I have to pull over and try to "stomp" it out. Ya'll can tell I'm from the south? HA! Anyway, I'm just rambling on. I hope everyone is doing ok. You're all still in my prayers. Love, Peace, Hope & Prayers, Pat --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
