Julie,
Tell Rachel I do the same thing .......lol........I take my gleevec at bedtime so that the worst of the nausea is while I am sleeping. I still get sick to my stomach sometimes during the day and I still get alot of the other side effects but I feel better if I take it that way. I started doing that about a month after I started taking it.What is odd about it is that usually in the evening a couple hours before I would be taking it again I would get really really nauseated! That happened this summer alot. Tell her that phenergen can be her best friend...lol....my doc keeps me a constant prescription of it. Most of the time I can take just half a pill and it will settle my stomach that way I dont get too sleepy especially if I have to take it during the day.
Hugs,
Katy
--
xanga.com/katybug45
xanga.com/katybug45
-------------- Original message --------------
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
>
> Hey All,
>
> Haven't posted in a while. I believe you're right. No correlation
> between the two. I think both come with an immune system mess up, but
> that's only my gut feeling. No scientific research involved. I
> believe my entire family has a rotten immune system or at least have
> immune systems with predispositions to certain diseases. Two of my
> brothers, one of my sisters and I have Crohn's disease. Among the 4 of
> us we have had 4 bowel resections (my brother has had two and my sister
> has had none). A bowel resection is the removal of the affected area,
> usually located near the place where the large and small intestine
> meet. It's normally a final effort if all meds fai l.
>
> I have Rachel who is my CML daughter (now 16 years old). The real
> kicker is my oldest daughter, Aubrey, is currently in the hospital
> trying to avoid having a bowel resection due to Crohn's Disease. We
> almost lost her last Tuesday night due to the negligence of her FORMER
> doctor. Obviously, we have a family who doesn't fight off diseases
> very well. Crohn's isn't even supposed to hit the second generation.
> It usually skips a generation, but no such luck in our family.
>
> Good luck with everything. The only advice I can give is keep the
> stress as low as possible. Also, Rachel takes her Gleevec about 1/2
> hour before bedtime. She says that way when the yucky feeling starts
> to hit she is asleep and doesn't feel it. I know that is the opposite
> of many others here, but she likes it that way. The only thing I might
> be concerned with is that you don't digest well and sleeping coud make
> that worse.
>
> Good luck!
>
> Julie
> Mother of Rachel
> dx 11/02/99
> bmt 3/00
> relapse 3/01
> Gleevec 8/01
> cytogenetic remission 12/01
> currently showing residual disease (they think)
> #196 on Zavie's list
>
>
> QUOTE>
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