Katy, I am glad your doc's are turning out to be cool and I hope things work out for you, I thought I was gonna have to come down there!! :p
Take Care Sis,
Terry
On 10/28/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
Hi Lisa,The name of the drug is "Provigil" I took the first one yesterday and it works really well. As for the nerve pain, before they took me off of gleevec (which totally got rid of the pain) my neuro gave me Lyrica, it works really well for nerve pain BUT it will mess up your head so be careful.Hugs,Katy--
SHIH-POO Puppies now available! First shot and wormed. Email me for more info!
xanga.com/katybug45-------------- Original message --------------
From: "lisa mcneil" < [EMAIL PROTECTED]>
>
> Hi Katy
>
> I like the sound of that drug that gives you energy I sure could do with
> alot of that. Did your neurologist have any theories on your pain. Has he
> ordered any tests or suggested any drugs to take. I saw a neurologist a week
> ago. He wasn't too sure on what my pain was or how to treat it. He suggested
> having a bone scan.
> Thanks Lisa
>
>
> >From: [EMAIL PROTECTED]
> >Reply-To: [email protected]
> >To: [email protected]
> >Subject: [CMLHope] Well I think I got a handle on it........
> >Date: Sat, 28 Oct 2006 07:10:18 +0000
> >
> >Well as ya'll know I have been rather nervous for the past week after my
& gt; >onc's nurse calling and telling me I was positive. I have also been pretty> 84&_t=54321&_r=hotmail_end text&_m=EXT
> >scared considering they had just taken me off of gleevec and were'nt going
> >to put me on anything else and I couldnt figure out why? I also told you I
> >was going to talk to my Neuro. who also has CML and maybe HE could explain
> >to me what my onc. was doing since they know each other.
> >Well this is what he said, At one point he had to go off everything for
> >four months, so they could see what his Philidelphia chromosone was doing.
> >That apparently that is what my doc is doing, I guess to see how fast or
> >slow it will come back, maybe I guess to see if the gleevec impeded it to a
> >point that it will be very slow going.(on that I am not sure) Also he said
> >there IS a criteria for being taken from one drug to another. They have to
> >wait a certain period and I DO have to be positive to a certain point. Well
> >I still am not happy but at least I understand a little of what is going
> >on. I love my Neur. I feel better after seeing him then I do when I see my
> >onc. He just understands better what I am going thru having been thru and
> >still going thru it himself. I told him I almost called him one night at
> >home and his response was YOU SHOULD HAVE......I almost fell off my chair,
> >around here you just DONT call a Dr. after hours much less at home, he told
> >me "we blood brothers!!! wel
> >l blood brothers and sister"...lol.....YOU call me ANYTIME you need to
> >talk!!! He is sooo cool. You remember back awhile ago I told you I had
> >suddenly lost the use of my leg?(three times) and had lost the use of my
> >hands several times? He said it was from the gleevec!
> > Also remember a few weeks ago when I asked if anyone else had had
> >abdominal charley horses? Well I was working at the Dead End haunted house
> >tonight and they started hitting me one right after the other!!! It was
> >awful! I would be right in the middle of scaring the pants off of someone
> >and my side would knott up like crazy!! The cramps would hit me over and
> >over for about thirty minutes then quite for a while then start again.
> > Oh yeah, on October 9, when they did the gene study my WBC was 10.2,
> >I had them do a finger stick yesterday morning before I went to my Neuro
> >and it was DOWN to 8.2! And without having gleevec for the last three
> >weeks! But then again worry wort that I am that is kinda bothering me since
> >my left side was cramping up so bad tonight because one of the symptoms of
> >an enlarged spleen is a low white blood count!
> > One more thing before I go, any of you guys having trouble staying
> >awake or being tired all the time need to ask you Dr. about a new drug
> >called "Providgil" my neuro started me on it and OH MY WORD I have not been
> >sleepy all day, actually I been running like a windup toy on high!!! (as if
> >you cant tell by how I am rambling in this email) anyway it really works
> >well!
> > Okay okay I am going now just wanted to check in and let you all know
> >what I found out.
> >Hugs,
> >Katy
> >
> >
> > >
> > > >
> >
> >
> _________________________________________________________________
> Research and compare new cars side by side at carpoint.com.au
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>
>
>
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"There is nothing ever wrong..but
nothing's ever right..such a cruel contradiction".
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