Hi, SuziQ,
I have been taking diazide and potassium long before I was dx'ed with CML
therefore when I started on gleevec I never had the problems that most people
have had with excessive edema. My eyes were still a little puffy but nothing
like I expected to have. Now about a year ago I did start having some problems
with my arms and upper legs swelling (which I thought was kinda wierd) so they
doubled my dosage and it went away. Awhile back they put me on Lasix for a
little bit but I put myself back on diazide and DCed the Lasix because it was
like it sucked every bit of fluid out of my body and my mouth and eyes
constantly felt like they had sand in them.
A little update here on me, I have been sick now since around the 19th or
so of October, pneumonia, then sore throat and bronchitis then ear
infection.........welllllllll.......after three differant antibiotics I still
cannot hear out of my right ear as a matter of fact it had started popping like
it was going to open up about a week ago and I could hear a little better then
I woke up two days later and it was as bad if not worse then before! My throat
is sore again, my lymphnodes in my neck front and back are sore as boils and my
OTHER ear is starting to itch and ache, I feel so sick and so tired! I am so
frustrated I have NEVER had anything hang on like this and it is getting me
down emotionally as well as physically. The last few days I just feel like I
want to crawl into a hole as my grandma used to say and pull it in behind me.
On top of this I am trying to pack up the house as we are supposed to be moving
the eighth of December. Dont know how we are gonna get it all done
with me down physically and Dale is down too and he has to work on top of all
of it. No vacation time left so his whole two days off he will be working like
a mule then have to turn around and go right back to work..............sorry, I
didnt mean to have such a pity party but it does feel good to kinda write it
down and get it out of my system. I have no one to talk to anymore, everyone
calls me to "vent" and then I have no one myself because I feel like they have
enough problems without hearing mine and Dale is so tore up over loosing the
house and everything else that is going on that I cant lean on him right now.
Again sorry but thanks for listening.
Struggling to "keep looking up" *S*
Katy
--
"The innocent and the beautiful have no enemy but time."
-William Butler Yeats
"Women and cats will do as they please, and men and dogs should relax and get
used
to the idea."
-Robert A. Heinlein
Katy
DX: 10/03
#677 in Zero Club
xanga.com/katybug45
-------------- Original message ----------------------
From: "Suzieq" <[EMAIL PROTECTED]>
>
> Hello to all:
> Just wanted to update those I had talked to before about having a
> problem with my throat & voice in the mornings. It was like I had
> something in my throat & didn't have much of a voice........after a few
> hours, it would be fine. Well, Anjana suggested it might be water
> retention around the vocal cords because she noticed her husband who's
> been taking Gleevec for some time now had had the same problem for a
> while. After taking a mild dosage of a generic form of Lasix the last
> month, I don't seem to have that problem any longer. My doctor told
> me it was up to me whether I wanted to take it daily or only when I
> felt I needed it the most. I just went ahead and took it every day
> along with the extra Potassium she prescribed & noticed that I don't
> seem to have the swollen hands and feet as before. Still have a mild
> swelling around the eyes some mornings & just deal with it. It's not
> as bad as it was in the beginning, thank the Lord. I awoke some
> mornings looking as though I had been in the ring with Rocky Balboa!
> (smile)
>
> Just keep Looking Up,
> Suzieq, Dx'ed 1/2004
>
>
> >
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