Katy So sorry you are having such a bad end of 2007. I don't really recall reading where you asked for advice, but I would agree with Judy in contacting Novartis for their program. There is a way to get gleevec free. It is worth the investigation. The website is: http://www.novartis.com. Go to the article on the right side about providing gleevec to people in India as it goes on to say how to apply for the program for it as well. That would take one of your stresses off of you. If you have problems, let me know as I am in contact with a Norvartis DM.
I am not too familiar with any of the finanical and legal issues you are having but I do know something about teenagers. I teach theology at a Catholic High school and have worked with teens to some degree for the past 25 years in the realm of faith issues. Katy, these kids go through different stages of faith development and all of them, at some point, question the faith that their parents pass on to them. It is a natural occurance. John Westerhoff calls the three stages Experienced, Affiliated, Searching and Owned. Teens between 13-18 are in searching faith, asking all sorts of questions and trying to make sense out of God. It is natural for them to 'claim' they do not beleive what you believe. The best advice I could give is to be patient, and keep your son engaged in converstation around his questions. Try hard not to be forceful and walk with him in this searching phase. Help him find his answers. They often go against organized religion of any kind because they see it as 'one more institution that is telling them what to do". I have proclaimed athiests, agnostic,and students who are Muslim, Buddhist, Jewish and more in my classes. My biggest but most successful challenge is to meet them where they are and bring them along just a little bit on thier journey of beliefs. My guess is that he is just showing some independence with you and that his foundation is there and will carry him when he is ready. Just my 2 cents....even if you didn't ask. Good luck. And I will wish all good things for you in 2007. Barb in AZ. [EMAIL PROTECTED] wrote:
I know I havent been on here in a couple of weeks but I really need to vent and since what I say wont directly effect your lives you are the best candidates for me to pour my heart out to. I am sooooo angry tonight, I really dont know exactly why, at least I cant put my finger on any one thing but I just am. You all know my story, three years ago I was diagnosed with CML, but it was okay because not only did I have my husbands insurance I had Medicaid, sooo, I could afford gleevec. Well about three or four months after I am diagnosed the state says your husband makes too much money ($2200 a month before tax) so we are taking your medicaid. We barely made it from paycheck to paycheck, so my Dr. has a suggestion, GET DIVORCED! Then they cant take it cause they cant count his income. So we did. It has driven me crazy for three and a half years!!! BUT as everyone said it was just a piece of paper and in the eyes of the Lord we were still married. We never seperated and never took off our rings. But without medicaid we could not afford even the 4 or 500 dollars a month for gleevec so it was get divorced and get your meds or stay married and die. ANYWAY............ so then you guys know that this summer or late summer I relapsed. Not too much just a little the doctor said and left me off of gleevec for about two and a half months because of the pain gleevec was causing. When he did a gene study again about a month ago low and behold I was MORE positive so he says start taking gleevec again so I did. This time around the nausea has been at least three or four times worse then the first time and of course the pain has returned in my arms and legs so I dred going to bed because it is worse at night. But I am taking it religiously, in the middle of all of this my middle son (16) informs me he is agnostic, I was raised in the south in the bible belt, teethed on a penticostal pew, and that was one of the worst things he could tell me or so I thought, now he says he is (and I really do not mean to offend anyone by my reaction it simply is not in line with my beliefs) He says he is Budhest (dont know exactly how to spell that) okay my mom goes into a tail spin on that one. She believes that my whole family is hell bound anyway, a week before Thanksgiving we get served with foreclosure papers. (okay someone stop the stress train now I need a break) so we decide (the company kept giving us the run around till we were six months behind when we only missed one payment to begin with) we decide we arent gonna fight it! I find a house a really cute little house three blocks away, on Dec. 9 we move. The rent is 150 less then our house payment and the utilities should be lower due to good insulation and with my SSI and his paychecks we can do this. Well I call the SSI office a few days before Christmas to tell them I have moved so they say come down so I do and bring the foreclosure papers. Well guess what? They are just starting the foreclosure procedure which could take anywhere from 6 months to two years so the state looks at it like I have a $75000 asset I could just sell and so I am inelligible for SSI and Medicaid once again!!!! I get home on the verge of a nervous breakdown and get a call from our car loan people, they are gonna repossess our car because we didnt make a payment in November and the reason we didnt is because I applied for a defferrment because we had to come up with first months rent and deposit and utilitie deposits. I just went in and laid down next to Dale and just bawled. I said ya know what if all this is gonna happen anyway we might as well get remarried. He said but what about your medicine and I said well I will die married and happy!!! I said I dont know honey but maybe we will just have to trust God for once. So Thursday the ONLY good thing that has happened lately Dale and I got remarried!!! So now when I talk about my "husband" I wont feel like a hipocrit. What am I gonna do about gleevec ??? I dont really know right now, I have an appt. with my Onc. the 14th (after that I dont know about even affording a doctors visit) and I will fill him in and see what he says. I know that if he wants to he can keep me in samples. At least I think he can. OOOOH yeah and ON TOP of allllllll that I found out that my 17 yr old neice took my 15 year old daughter out this last Tuesday and drove around with her and my daughters friend and one of her own and bought some weed and got my daughter to smoke it with her!!!!!!!!!!!!!!!! I am sorry I am not meaning to cuss but the last two months have just been HELL on Wheels for me! Now why am I angry? hmmmmmmm have to think about that one, maybe its just because I havent had my hormones in over a month!.........I am sorry for ranting and raving on here I know that there are people who have it worse I am sure but thank you for listening and giving me a place to smash plates against the wall and no one gets hurt by the shrapnel.....*S* I love you all and miss you and hearing from you, I hope that everyone else had a wonderful Christmas and I hope they have a safe and Happy New Year. I step down from my soapbox now and leave it open to the next frustrated CML'er.......... Hugs, Katy
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