Hello Susan and everyone I too have my dizzy spells, in fact sometimes I am downright staggering..could not pass a road side dui test. . but I think mine is from low hemoglobin I am ok as long as it stays above 100K but as soon as it drops down below that I start to get weak and dizzy. I do not seem to mind low platelets but that Hgb is another thing, I asked to have my cutoff point raised to 90K so I now get hemoglobin around 89K but most times by the time I get it my Hgb is down closer to 80K, only trouble is that ferritin is high , so I am now on exjade for that... ahh the joys of CML fix one thing another goes west...I rather be on exjade than desferal injecting myself every day for 11 hours a day was a real pain... some people can put the pump in at night and sleep I could not.. so I did it all day and carried the pump slung over my neck... Exjade if it works it great just a couple of tablets in a glass of water stir until melted and drink... we are not sure it is working...but for over use of transfusions it sure make life a wee bit better my Diary of blood counts and transfusions http://easyskip.tripod.com Skipd
--- [EMAIL PROTECTED] wrote: > I have experience a lot of things with Gleevec. > Dizziness is definitely one > of them. It comes and it goes. I think it has to > do with the water > retention in the body causing some swelling in areas > that we least expect. Besides > the eyes, you can usually see it in the ankles. I > have not swollen up in a > long time and noticed this past Thursday while > seeing the doctor, that my eyes > were more swollen, my ankles a little bit, too BUT > also my hemoglobin had > dropped as well. So, off to the doctors again in > one week! The office's > protocol with me is that I can stay away if the > hemoglobin stabilizes BUT as soon > as there is a drop (mine went from 12.2 to 11.2), I > must come in the > following week! For those that do not know me > well, I needed 11 transfusions to get > me up and running with a major reduction in the > Gleevec dosage! > > Everyone, I feel so much better taking off that > 41-42 pounds with Weight > Watchers. BUT you have to be ready to do it or it > will not work! I feel like I > had 3 other people I was carrying around with me! > Now, I just feel good and > personally, I love the comments especially since I > just returned this past > week to teaching my little Kindergartners this > school year! WHAT A HIGH! > > Hugs, > Susan > > dx. January 8rd, 2003 > Began Gleevec: 4/10/2003 > Ceased Gleevec: 4/21/2003 > "Rebegan" Gleevec: 4/25/2003 > Tranfusion dependent: May 2004-November 2005 > Gleevec reduced to 400mg: 8/2004 > Gleevec reduced to 300mg: 8/2005 > Gleevec reduced to 200/300 alternating days: > November 7, 2006 to present day > Still undetectable 4/5/2007 > > > > > ************************************** Get a sneak > peek of the all-new AOL at > http://discover.aol.com/memed/aolcom30tour > > > > SkipD Dx'ed Dec 1978 on Myleran(busulfan) 26 yrs on Hydroxyurea for about 1 year on Gleevec for approx 1.5 years on AMN107(Nilotinib) to now ____________________________________________________________________________________ Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. http://smallbusiness.yahoo.com/webhosting --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
