Hi Deb, Sorry to hear that both Gleevec and the new medication are not working as needed. I was diagnosed 9 years ago at age 58, but thankfully Gleevec is still working. Before Gleevec was available, we started the process for a bone marrow transplant. The National Bone Marrow Registry keeps track of the various potential donors on their lists. The hospital where the bone marrow transplant may be preformed can request one free worldwide search of all donor bases, unless the procedure has changed since 2000. Your Hematologist or Oncologist should be able to advise you on this. Also find out how many BM Transplants are preformed at your potential hospital as the more experienced the better, and the numbers vary dramatically across the nation.
In reference to applying for Social Security Disability, submit the documentation with the strongest recommendation and statements from your doctors as possible as I understand about 90% of requests are turned down on the first submission. I was turned down the first time but won on the second round. When your's is probably turned down, file for a second review, and even a 3rd if necessary. The process moves very slowly, and make sure you fill out ever form they give you completely. Keep records of everything. It is frustrating, but eventually you should be able to get the support. Do contact the local leukemia society, or go to their national web site at www.lls.org or leukemiasociety.org as they can provide you with both information and support. A great site to secure a lot of information is www.cancer.gov. Good luck to both of you, and as caregiver you need to get some rest occasionally as you don't need to "burn out" and not be available for a long battle. Ken --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
