Hi Jeanie, I was diagnosed by BMB in Dec 2008. When they did blood work at the ER prior to my dx (ER visit due to chest pain) - they noted the elevated white count and, I, too, had giant platelets. I do not know what giant platelets are either and wonder if I still have them as I am in a clinical trial at Cleveland Clinic and no one tells me anything - other than: "chills? I never heard of that." - "back pain? hmmm, let's order an MRI and see if something else is going on."fatigue? is it better since we've upped your Synthroid? (no)." "Depression? well, you've been through a lot."
I hate to look a gift horse in the mouth - but they deny all of my symptoms and I see these same symptoms listed on this website all the time. My vision is almost always blurry. I am on 400 mg Gleevec once a day. Last check, my white count was 11,000 - don't know the results of bcr-abl or FISH test (and wouldn't understand them if I had access to them). I don't know if my symptoms are from the disease itself or the Gleevec. I find you all quite inspirational, but at times, I feel quite hopeless. Walking or standing more than 10 minutes is excruciating. Would like to exercise (walk) but the pain is so limiting. Granted, this back pain may be the result of something else, i.e., degenerative disk disease. I am having trouble quitting smoking (I know - what a moron). I hate to be so negative as that is not my true nature. There is so much conflicting information on the web and I understand the basics (Ph positive CML as a result of 2 chromosomes mutating that produce the protein that causes the cancer in the blood and bone marrow). My memory is awful, my eyes are swollen and I can't wear any of my clothes (short of sweat pants). I know I'm whining - please forgive me. I truly believe that stress triggered this disease (high-stress job, caregiver of my father dying of pancreatic cancer, unexpected death of best friend, my own dx in the middle of all this). Does anyone else feel this way? Thank you for your consideration and inspirational stories - I truly value them. Kelly On Mar 18, 5:50 pm, [EMAIL PROTECTED] wrote: > Hi all, > Congrats to all the 5 year anniversary CML warriors. > My platelets have started to rise again. They were 763 with Giant Platelets > noted. > What are these Giant Platelets? > Also my MCHC was out of the normal range: 31.9. > I think my onc will probably up my Gleevec again or change my therapy. > I have had the large platelets but this time it said Giant Platelets. > Blessings to all. > Jeanie<3 > > **************Create a Home Theater Like the Pros. Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=a...) --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
