Hey Group. . . For least # of BMB/BMA, I had (1~~One) for diagnosis on 11/21/2003. . .and to date; I haven't had another and will never have another. I have numerous Chronic Orthopedic Diseases. . . I call ALL Chronic Illnesses. Including Cervical spondysis, Lumbar Degenerative Disease of the Spine, ie., 3 hip surgery's~~2 total hip replacements and numerous other Ortho Illnesses, therefore; I've had the LEAST BMB/BMA. . .hehehe. . ."K" CMLHope group <[EMAIL PROTECTED]> wrote: From: CMLHope group <[EMAIL PROTECTED]> To: CMLHope digest subscribers <[email protected]> Subject: 4 new messages in 4 topics - digest Date: Sun, 13 Apr 2008 07:43:13 +0000
CMLHope http://groups.google.com/group/CMLHope?hl=en [email protected] Today's topics: * Oldies - 1 messages, 1 author http://groups.google.com/group/CMLHope/browse_thread/thread/6b3d8242ce9fc9f9?hl=en * 7 new messages in 2 topics - digest - 1 messages, 1 author http://groups.google.com/group/CMLHope/browse_thread/thread/63cebe7719ad4610?hl=en * Oldies newbies the least BMAs - 1 messages, 1 author http://groups.google.com/group/CMLHope/browse_thread/thread/37d23b7a06c2e993?hl=en * 14 years and still going - 1 messages, 1 author http://groups.google.com/group/CMLHope/browse_thread/thread/d97ac9e234045d8e?hl=en ============================================================================== TOPIC: Oldies http://groups.google.com/group/CMLHope/browse_thread/thread/6b3d8242ce9fc9f9?hl=en ============================================================================== == 1 of 1 == Date: Fri, Apr 11 2008 11:16 pm From: "Gay Bratton" I had hairy cell leukemia in 1993 and had several bone marrow biopsies for that. I was diagnosed with CML in 1998 and have had 2 or more bone marrow aspirations or biopsies every year since then, so I'm at least at 25 or 26, but it seems several people have me beat! Gay Bratton -----Original Message----- From: [email protected] [mailto:[EMAIL PROTECTED] On Behalf Of Dave Sent: Friday, April 11, 2008 2:33 PM To: CMLHope Subject: [CMLHope] Oldies Senior Members: Congrats to Gwen, Gay, SuzieQ, and any other long-termers! I will reach my 14th year with CML August 1. It is important that we post occasionally to give the newbies a shot in the arm. It hasn't always been easy, but here we still are. I have a fun challenge to offer (like Zavie's Zero Club). Two records: number of bone marrow aspriations and number of sticks. I posted some time ago before PCR was standard that I had 28 bone marrows. I don't remember who, but someone beat that. I have tried to compute the number os sticks (not including blood taken from catheters). Six years on Interferon sticking once per day added to the number of blood sticks in the arm, I come up with about 3,000 sticks. Anybody beat that? We've come a long way, Baby! Dave ============================================================================== TOPIC: 7 new messages in 2 topics - digest http://groups.google.com/group/CMLHope/browse_thread/thread/63cebe7719ad4610?hl=en ============================================================================== == 1 of 1 == Date: Sat, Apr 12 2008 4:47 am From: IAintFinishedYet Hey Group. . . CONGRATS . . . Gwen ! I have been wondering how/where you were. . .CONGRATS on your longevity. You too Gay. . .CONGRATS! Most of all, to My Hero~~Skip. . .CONGRATS ! ! ! Please send me the xact # of years, so that I don't have to use 30++++. Is this 32, 33, or 34 years??? Please email/post the xact # of years for me to use in my Welcome Newbie Letter. . .THANX Take care, I have ALL in my prayers. . ."K" "K" "I AIN'T FINISHED YET"!!! ============================================================================== TOPIC: Oldies newbies the least BMAs http://groups.google.com/group/CMLHope/browse_thread/thread/37d23b7a06c2e993?hl=en ============================================================================== == 1 of 1 == Date: Sat, Apr 12 2008 7:22 am From: [EMAIL PROTECTED] Hi all, I've probably gotten the least BMA. I've only had 2 in the 4 years of CML. My last one I was put to sleep. Didn't feel a thing. As for sticks, haven't kept up with it. Blessings to all. Jeanie<3 In a message dated 4/11/2008 5:49:27 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: Dave, You have me beat. In the last 9 years I've had somewhere around 23 to 25 of them. God only no's how many blood tests. Their was a time I didn't want to get married because you had to get a blood test. Things do change. Now the blood work is a piece of cake. Best wishes Dave (Greenie) Greenberg **************It's Tax Time! Get tips, forms and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolcmp00300000002850) ============================================================================== TOPIC: 14 years and still going http://groups.google.com/group/CMLHope/browse_thread/thread/d97ac9e234045d8e?hl=en ============================================================================== == 1 of 1 == Date: Sat, Apr 12 2008 9:25 pm From: DAWN RODEGHIER Hi, In February I reached my 11th yr anniversary and I agree with you on the Gleevec being worth the side effects. I also went through the Interfeon Alpha A injections not fun at all! Jim Rodeghier "[EMAIL PROTECTED]" wrote: Hi, In March of 2008 I hit my 14 yr anniversary since being diagnosed with CML. Just wanted to post to all those new patients struggling with the Diagnosis of CML. Keep up the good work and yes there are side effect with Gleevec, but it is worth in. Alot better than the 2 daily injections of ARA-C and Interfereon that I started with. I am sure they will eventually come out with something even better one day, with less side effects. Keep the Faith and Keep on Trucking Love Gwen ============================================================================== You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] or visit http://groups.google.com/group/CMLHope?hl=en To unsubscribe from this group, send email to [EMAIL PROTECTED] To change the way you get mail from this group, visit: http://groups.google.com/group/CMLHope/subscribe?hl=en To report abuse, send email explaining the problem to [EMAIL PROTECTED] ============================================================================== Google Groups: http://groups.google.com?hl=en "K" "I AIN'T FINISHED YET"!!! --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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