Our son, now 18, was diagnosed with CML in 2004. Gleevec has kept the disease under control and he is doing well except for delayed growth. For the first three years he was under the care of an oncologist at a major teaching hospital in San Francisco. Because CML is so rare in young people, he was the only CML patient in the pediatric unit. A year ago we changed MD's when a noted CML specialist arrived at the hospital. This doctor has a large number of CML patients, is doing clinical trials and research, and is right up to date on new developments in the field. We strongly suggest that you seek a CML specialist for you son. A regular oncologist can not be expected to have the breadth of knowledge necessary to provide the best available treatment for this rare disease. As to your son's lab results, you need expert interpretation. The small change in the wrong direction is probably not significant. Only a CML expert has the experience to give a proper interpretation because he sees lots of patients and lots of test results and is familiar with the technical aspects of the tests. You may email me privately if you want more information on contacting a CML specialist in the San Francisco Bay Area. Run, don't walk, to a CML specialist. Your son deserves the best. John
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