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I am new to this group. In September I was diagnosed with CML. Was being monitored by the transplant center (Kidney transplant November 2007) on a weekly basis to make sure my creatinine was within normal limits and they noticed an increase in my WBC's, they sent me to the hematologist when it was at 37,000. He started me immediately on 400mg of Gleevac. Within 2 weeks my WBCs were at 11,000. All labs are basically at normal level. HBG is a little low at 9.
Anyway, as far as side effects are concerned I have experienced daily diarrhea, nothing extreme, and nothing that can't be handled. Was experiencing some slight discomfort around area of the spleen but that has dissipated.
They were seeing me every week, now every two weeks and then every month, eventually every three months.
I read your letters every day and thought i'd join in today.
Thanks for being there for people like me.
: )
-------------- Original message from Tanya Metaksa <[EMAIL PROTECTED]>: --------------
>
> My husband spent two years on Gleevec and it worked great for the CML.
> He didn't have as many symptons as you had, but it was awful. When he
> switched to Sprycel the difference was night and day. Talk to your doc
> about going on Sprycel--it is different.
> Hope this helps.
>
> Tanya
> George dx 8/02
> Gleevec 400 until 1/07
> Sprycell 70mg since 4/07
>
> On Oct 27, 2008, at 6:04 AM, kellyelise wrote:
>
> >
> > Hi Everyone:
> >
> > I recently had my 3-month checkup at Cleveland Clinic. I have been
> > experiencing double vision - notice it most when outside (sun) and
> > driving. People 10 feet away - their faces are just a blob. Road signs
> > are 2 of them superimposed upon each other, just about impossible to
> > read. I can see well enough to keep my vehicle between the lines, but,
> > anything I try to focus on is really a complete blur. Once I return
> > inside, out of the sun, the double vision/blurriness dissipates. I
> > have been having chronic headaches, pretty much all over my head -
> > sharp pains in the left side of my head. My memory loss has become
> > almost frightening.
>
> >
>
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