Hello all once again,
just an update on my ongoing battle with my CML and the drugs to combat it.
After my last hospital stay, I was told not to use dasatinib any more.
They had to tap me and remove all the pleural infusion build up caused by 
dasatinib.
They removed 8.5 500ML bottles of liquid,over a threee week period.  After 
another  3 weeks my doc told me we would go back to Nilotinib, at a reduced 
rate (400MG once day).  In six days to the hour, my liver enzymes shot through 
the roof.  Once again I am off any of the nibs, Imatinib, Nilotinib and 
Dasatinib.  I am still a bit sick and pain in the back but it is less that 
yesterday, so I imagine I will wait until my doc comes back from ASH to find 
out where we go from here. I am beginning to wonder if there is any of these 
drugs I can tolerate.  I guess I am paying the piper for living so long with 
CML.
Have a great day all

SkipD
dx'ed 30++++ years ago.




      

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