Thank you Suzan and Glenn: You have eased my worry quite a bit. I just don't trust any insurance company (This LTD company has pulled more stunts than I care to relate in order to avoid paying my benefits - which I had previously paid for. I had to contact state representatives in order to threaten them with investigation due to their lack of good faith and the low-rent tactics they employed - it worked). Even my healthcare insurance danced around issues in order to avoid paying bills (they would pay for the needle but not the biopsy procedure (BMB) due to the way the doctor billed it together - WHAT? No kidding). They told my nurse practitioner that I would have to pay $1700 per month for my Sprycel but failed to tell her that they had a mail-in program where my Sprycel would only be $48 for a 2-month supply. And isn't it odd that the hospital where I have to go for bloodwork and x-rays could not find my orders that my nurse faxed twice and verified verbally over the phone (Aultman Hospital = Aultcare Insurance - tied in together). I could go on and on and on. By the way - I have 2-1/2 bottles of Sprycel that I cannot take (what a waste of money). I will check with the Cancer Society to see if it can be donated to someone who already takes it and has trouble paying for it. I know there are laws and blah, blah, blah, but cheese and rice! That stuff is like gold!
I will just sit back and depend on those insurance companies to do what's right out of the goodness of their hearts (yes - it is sarcasm). Thank you, thank you - sincerely! I know I blab on ad nauseaum......but I'm allowed to here, aren't I? Kelly On Jan 4, 10:06 pm, glenn <[email protected]> wrote: > I agree with Suzan, that your company's changing hands should not affect > your long-term disability insurance. The company I was working for was > bought out and this did not affect > my long-term disability insurance. > > Glenn Fuller > > i > > > > Suzan Collins wrote: > > Your long term disability should continue hopefully. When I worked I > > paid a monthly payment for long term disability insurance and > > supposedly I will receive my long term disability until I am 65. Since > > it is an insurance program you would think that they could not > > discontinue it just because the company you worked for changes hands. > > Why not call the insurance company and ask them questions on this and > > how long you would be able to collect your payments. Any one else have > > any thoughts on this. > > Suzan > > > --- On *Thu, 1/1/09, kellyelise /<[email protected]>/* wrote: > > > From: kellyelise <[email protected]> > > Subject: [CMLHope] where to turn? > > To: "CMLHope" <[email protected]> > > Date: Thursday, January 1, 2009, 3:27 PM > > > Hi Everyone! > > > I hope everyone had a nice Christmas and New Years. I believe I > > mentioned before that I was taken off of Gleevec 400 mg q.d. in > > October and started Sprycel 70 mg x2 q.d. I was absolutely miserable > > on the Sprycel. I was so full of fluid, it was miserable to even eat > > not to mention the fact I had conversational dyspnea (gasping for > > breath between words). Nevertheless, I had to stop the Sprycel > > Christmas Eve. I had a BMB in early December and evidently still > > showed 0 PCRU. Yesterday (New Years Eve), my husband was laid off from > > work - no warning - and was informed our insurance coverage ceased the > > same day. We have no secondary insurance. I have 2 bottles of Sprycel > > that I can't take and no money to go to the doctor. I get disability > > payments through long-term disability insurance provided through my > > previous employer, whom I just found out was just taken over by > > another company starting the first of the year. When it hits the fan - > > it really hits the fan, eh? I don't even know if my disability > > insurance will continue or not. So. I will be busily cancelling all of > > my doctor appointments. I called in every prescription I had yesterday > > and the insurance still paid their portion. Quite frankly, I have no > > idea where to turn. I had to laugh.........just when you think it > > couldn't get any worse.........My dog had some type of stroke or > > something - she's my buddy - a little Boston Terrier - I took her to > > the vet and he explained what was going on and put her on steroids. He > > was going to do every test known to dogkind down to damn near brushing > > her teeth when I put my foot down and he knocked $100 off the bill (it > > still cost me $168, but this was before I had a clue my husband was > > getting laid off). I could not bear the thought of her suffering and > > me standing idly by doing nothing. She is doing very well and seems to > > be recovering nicely. So, back to me. What do I do? Apply for > > Medicaid? Probably can't have a house or a car to qualify......sheesh. > > > On a BRIGHTER note, my mom got my husband and I airfare and hotel > > reservations for the 3rd week in January in Lauderdale by the Sea, > > Florida. Can't back out or she loses her money. So, I DO have > > something to look forward to. > > > How long does it take for the CML to come back when you take a drug > > holiday (I know, everybody is different - I just need an estimate). > > > Honest, I'm not crying in my soup. I am still a little too shell- > > shocked to even react, other than hysterical, inappropriate laughter. > > I live in Ohio, so if anyone knows of any clinical trials, etc., > > please let me know. > > > Thank you for being here! > > Kelly- Hide quoted text - > > - Show quoted text - --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
