Hi SusieQ and thanks for the great uplift.
I was worried when I first started Tasigna, but with the help  of Norm and 
Millie, I made it through the first 4 months; now going into my 5  month.
I have no swelling like with Gleevec, but do have a leg rash  that comes and 
goes. I'm so happy I had this option, and they are now testing  more drugs to 
help us; maybe they will come upon a cure.
Thanks for this group also; their uplifted e-mails make my day  and make me a 
stronger WARRIOR.
Blessings,
Jeanie<3
In a message dated 2/6/2009 12:17:53 A.M. Central Standard Time,  
[email protected] writes:

Jeanie<3:

Hallelujah!!!!   Great news......glad  that the new drug works......I'm
glad we have other options besides  Gleevec,  "just in case".  I return
for my four month check up on  the 23rd.  I'm hoping for another "none
detected" which would be my  first two in a row in five years.  I am
confident that after this  visit she will most likely go to a visit
every six months.   AMEN!  Tomorrow I have an appointment with a local
doctor.  My  mom started seeing him after moving here and getting new
insurance.  I  am impressed with the care she has been receiving from
him so far and since  I no longer have a "primary" doctor, I thought
well "you might as well see  him too".  I've filled out the necessary
paperwork so it won't take me  so long up front. (smile)  I need extra
time to think!
My previous  doctor I had as my primary (the one who ended up finally
dx'ing my CML left  his practice about a year and half ago.  I've just
been seeing my  Onc./Hem. doctor all this time.) I'm sure he is going
to be interested in  the CML as I will be to find out if he treats
anyone else with it......I've  been told pretty much that I am all
alone in my area.  A lady who goes  to my church had an uncle who
passed away about a year and half ago that  had CML for around twenty
years and was able to get on Gleevec when it came  out.  It put him in
to remission and later he ended up dying from a  heart attack....can
you believe it?  Anyway,  he was from a  little community close by.
But, he was the only one I knew.  Another  lady who comes off and on to
our church has the CLL, I believe, not  sure.  But, she lives in Rolla
(about 17,000) which is 26 miles from  me.

Well, I've rattled on enough here,  guess I need to quit and  go off to
bed as it's after mid-night.  I think I am becoming a night  owl.

God Bless & thanks for the good news  here,

Suzieq


 
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