Hi Kelly, So sorry for your troubles, I hope you get them sorted out soon. Have you thought about TAsigna. I'm on it and it is great. No swelling at all. Just a thought. Blessings, Jeanie<3 In a message dated 2/14/2009 11:31:53 A.M. Eastern Standard Time, [email protected] writes:
That's a very good question with a somewhat complicated answer. I was in a clinical study with the Gleevec. I started getting progressively forgetful (couldn't remember even conversations from the day before), had terrible nightly headaches, vision deteriorated pretty bad. They took me off the Gleevec in October and sent me to a neuro/ ophthalmologist - he determined it was the Gleevec causing the symptoms. Boot - off the study I went. They wrangled with my insurance company to pay for Sprycel. Got the Sprycel at 70 mg x2 a day. By the end of 2 weeks, I could not even say a complete sentence I was so out of breath (fluid overload). On Christmas Eve, my doc called the hospital I HAD to go to for bloodwork and x-rays and ordered both. They verified orders with faxes and phone calls. I get to the hospital and they claimed they had no such orders (not the first time - Aultcare Hospital - Aultman Insurance....hmmmm). Then my husband got laid off on New Years Eve - his employer was also in the process of changing insurance companies. My husband paid for COBRA - never got insurance cards or anything else to verify we had coverage. At the end of January we received requests from new insurance company to fill out MORE forms. So much for January's payment - couldn't even use the insurance. They say you have "coverage" - problem is, you can't use it. No money to go to doc. No news from Cleveland Clinic. I sent an email to my NP at Cleveland Clinic and told her I felt like I was put out to pasture since I couldn't participate in the clinical trial any longer. No followup after the Sprycel debacle. Since we have to wait for our income tax refund and cashing in my husband's 401k to pay for COBRA - we are in the "pending" section as far as insurance goes which means we have none. This new insurance copay on "specialty drugs" is 30% or $300, whichever is less. Ha! Meanwhile, Cleveland Clinic brought me in for a visit - signed me up for financial assistance - had me undergo a colonoscopy and are arguing with the makers of Sprycel to send me the drug for free (at a lower dose - 50 mg x2 a day). I am still waiting............and dreading that drug. I tried to make the argument for lower doses of Gleevec, no go. So, I pray. **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1218822736x1201267884/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=fe bemailfooterNO62) --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
