Richard, congratulations on your 6th anniversary & hopefully many more years of 
them. i haven't posted for
a while now because of radiation therapy for possible cancer in the prostate 
bed (prostate removed in August 2004).
I'm still on 400mg of Gleevec my 4th anniversary is in June 2005. I was 
scheduled for BMB last month but my onc.
wants to wait til end of March because of the radiation.
??? I want to thank all you CML Warriors for all the great knowledege & good 
sharing that keeps me on track everyday.
?????????????????????? God Bless you all,? Frank

-----Original Message-----
From: Richard H <[email protected]>
To: CMLHope <[email protected]>r
Sent: Mon, 23 Feb 2009 9:09 pm
Subject: [CMLHope] 6th anniversary




This week marks my sixth anniversary of my CML diagnosis.  What a ride
it has been.  Thanks to Gleevec I have remained close very low and
undetectable PCR's.  The latest is at .009 and in October it was .
001.  In September the reading was .017, and the puzzlement is that I
have been on Gleevec Vacation since the end of June.  We always know
that there are a few abnormal cells even it we are at .000.  I will
redo the test the end of March and if it remains up then I will
restart Gleevec and be prepared to start the Procrit shots when my HGB
reaches 9.0.  I have an ONC that has treated me since my diagnosis and
an ONC with the VA that monitors me to prescribe the Gleevec and this
is the protocol they agreed upon about Aug. 2008.  The Procrit did
it's job building My HGB to 11 in November and my system has started
building all the red blood factors on its own.  My last CBC indicated
that my HGB had risen to 11.1 without assistance.  Will post again
when I have more results.  Thanks to all that have been there before
me so that their experiences are there to guide my way.

Richard H.
dxd 2/03
400mg Gleevec 3/03
PCRU 11/03
Q-PCR undetectable 11/04
RT-PCR .014 11/05
RT-PCR .000 11/06
RT-PCR .001 11/07
Gleevec Vatation 11/07-1/08
Transfusions 12/07-5-08
RT-PCR 1/08 .017
Gleevec 400mg 1/08-6/08
Gleevec Vacation 6/08 - Unknown
Transfusion 8/08
Procrit 6/08 - 11/08
RT-PCR .001 10/08
RT-PCR .009  2/09



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