[CMLHope] Re: Washington's Health Care Plan

[maggy...@bellsouth.net]

March of 2006 my kidneys finally gave out - Polycystic Kidney Disease - and I began peritoneal dialysis at home.  I'm a RN and my nephrologist told me in March of 2006 to have a shunt placed for hemodialysis, never mentioning the alternative treatment - peritoneal dialysis.    Anyway, in November of 2007 my brother gave me a kidney, working very well, thank God.   I began Medicare coverage March 2007.   It is not my primary but the company which is my primary required I apply.  So I have Medicare and don't even  need it.  ::Shrugs::  

 

September 2008 I was diagnosed with CML (Chronic Myelogenous Leukemia), have been on Gleevac 400 daily ever since.   Doing well, Labs every week per my Kidney Transplant Doctor and the CBC is shared with my hematologist.   They draw the FISH etc.    

-------------- Original message from Catlubr <tigerlv...@cox.net>: --------------


>
> One thing that I'm worried about is how things will change for us
> (Clyde and I) after he must go on Medicare around Nov. 2011. He began
> dialysis Nov 26th of 2008. We read that after 30 months, he must go on
> Medicare. I'm not sure who notifies him of this. Does anyone have info
> on this question? Also, I don't know what will happen with paying for
> Gleevec on Medicare. His local hem/onc says that he may be going off
> Gleevec soon (?) due to his being completely zero for 2 years. Can
> anyone help us with info on this???
>
> Best always to everyone on the list.
>
> Carol Furumoto
> Clyde Dx 9/99
>
> On Jul 26, 9:16 am, patrick wrote:
> > On Jul 25, 7:50 pm, Margot wrote:
> >
> > > Personally, I think that we better get used to the idea of buying our
> > > own Gleevec.  If it is similar to the VA restrictions, they don't pay
> > > for anything that is not generic.  Also, probably letting us elders
> > > die is cheaper than keeping us alive.  Such is the "Change."  Just a
> > > thought.
> >
> > I don't know all the details but the VA dues supply non-generics under
> > some circumstances. I know this because my buddy sitting next to gets
> > his medical care and medications exclusively through the VA and he
> > takes 3 generics and 1 expensive name brand every day (not as
> > expensive as Gleevec of course!)
> >
> > And as we know without any doubt from our successes in treating HIV.
> > It's far CHEAPER to provide people medication to keep them healthy
> > than to "let them die" (in hospitals). A couple of weeks dieing in the
> > hospital would l pay for a lifetime or two of Gleevec.
> >
> > One personal suggestion; There us a lot of fear-mongering being
> > fomented by those who are profiting the most from the way things are.
> > And it appears to me that they have great sway with at least one news
> > channel. So my suggestion is - don't get all your input from one
> > channel on TV or even only from one(s) you agree with. Get a couple of
> > points of view and draw your own conclusions.
> >
> > From the nature of some of the comments that are ripe with foreboding
> > and light on facts I think it might be helpful to check out PBS or for
> > a outside point of view BBC or online, Reuters. (http://www.reuters.com
> > ).
> >
> > Patrick
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