Kelly...I am Tom and having some Gleevec issues. I noticed you were on Gleevec and had to stop. Did your side effects involve a rash? I would be interested in what problems you had. I have had a bad rash and they have stopped the Gleevec for 2 weeks. They are starting me back on Gleevec at a lower dose...300mg vrs 400mg. Here is my abbreviated history:
Tom Dunham, BD:8/1941 DX CML 12-23-2008 MDA Protocol: Tasigna-400mg; 2xday-1/09 Q PCR @ 0.17 7/09 Acute Pancreatitis-7/5/09 Stopped Tasigna-7/13/09 Q PCRU-7-29-09 ! Started Gleevec-400mg-7/31/09 Developed rash ~ 8/19/09 Rash treated with Steriods..improvement Rash worsens~9/22/09 Stopped Gleevec-9/28/09 Restarted Gleevec @300mg-10/8/09 Sorry about your flu....I do know that H1N1 cannot be diagnosed easily...it has to be done in a lab...most docs don't have the necessary test setup. You can go to Drugs.com to check for Sprycel interactions...but I would check with your oncologist first before taking anything. I am interested in how you are doing with Sprycel. I had been on Tasigna and had to stop because of toxicity issues. I am now on Gleevec...and having problems. Sprycel would be the next one to try.. I found Tasigna to be great...got to PCRU in about 7 months...only problem was it was killing my pancreas. You might want to try that one too if Sprycel doesn't work. Regards, Tom in KY. In a message dated 10/9/2009 2:47:27 P.M. Eastern Daylight Time, [email protected] writes: Hi everyone: Been quite some time since I've posted... I have the stinking flu. Went straight to my chest. I have a terrible cough, low-grade fever, headache, sore throat (diminishing), and runny nose. How do you know when to go to the doc and when to just let it run its course? I guess I feel somewhat better, throat isn't as sore as it was but the cough is harsh and punishing, relinquishing very little with extensive effort. I'm on Sprycel - BTW, the CML is back after my 8 month hiatus from Gleevec due to side effects. In other words, I am no longer in molecular remission. Just found that out although my doc has known since at least May. I have the results of my last BCR-ABL although reading it is like trying to decipher Sanskrit. Means squat to me. Anyhoo, I emailed my NP regarding the flu and 2 days later, still no answer. I don't want to go to my GPs office and risk infecting others - BUT - how do you know you have the "flu" versus something more serious - such as H1N1. I looked up the comparisons, both apply. Can I take an antiviral agent with the Sprycel? Any advice would be greatly appreciated. (I did get my annual flu shot a week or 2 before getting this "flu"). Sincerely, Kelly --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
