Hi, Tam

My husband's insurance will not pay for 6 tabs of Gleevec 100 mg. Nor will  
they pay for 1 tab of Gleevec 400 mg and 2 tabs of Gleevec 100mg. This is 
our  only alternative. Thank you for your reply!
 
Hi, Rebecca
 
My husband's oncologist says it is fine to separate doses. Perhaps putting  
them in the capsules might help nausea.
 
Kevin,
Thanks for your response. Although I do put my husband's other medications  
in his daily pill box, I NEVER touch his Gleevec tabs. ( I leave  that 
chore for him!)

  
____________________________________
 
From:  [email protected]
To: [email protected]
Sent:  11/20/2009 5:11:12 A.M. Eastern Standard Time
Subj: [CMLHope] Digest for  [email protected] - 6 Messages in 3 
Topics


Today's Topic Summary
Group: _http://groups.google.com/group/cmlhope/topics_ 
(http://groups.google.com/group/cmlhope/topics)  
    *   _An Excting Tip_ (mip://006d7b40/default.html#group_thread_0)  [2  
Updates]  
    *   _An Exciting Tip_ (mip://006d7b40/default.html#group_thread_1)  [1  
Update]  
    *   _Nausea and exercise_ (mip://006d7b40/default.html#group_thread_2)  
[3  Updates] 
 Topic:  _An Excting Tip_ 
(http://groups.google.com/group/cmlhope/t/471df9a31b6c9a18) 
bikercub <[email protected]>  Nov 19 12:41PM -0800


Why can't your  husband get 100 mg tablets? I take 4 tablets of 100 mg
each. When I was  on 600 mg, I took 6 tablets. I have Kaiser
insurance and I don't know if  that makes a difference or not.

I've been on Gleevec for 8  years and was on Interferon shots before
that. I've had CML for 17 years  (dx in May 1992) and still  going
strong!

Tam




Rebecca Russo  <[email protected]> Nov 19 04:09PM -0500


Dr. Mauro says  not to separate your dose, though. So apparently we
shouldn't be taking  part of our dose in the morning and part in the 
evening;
we need to take  it all at once. I'm taking 800mg and this is kind of a
pain. Any other  tips on how not to get sick would be great. I finally
figured out that  Gleevec and coffee are a horrible mix; guaranteed nausea!


Topic:  _An Exciting Tip_ 
(http://groups.google.com/group/cmlhope/t/7a3f39e532010da6) 
"[email protected]"  <[email protected]> Nov 19 09:53AM 
-0800


That is such  wonderful news about your husband. Thanks for your tip.
Fortunately I  only had nausea when I took Gleevec on an empty stomach.
I am sure others  will benefit from this suggestion. Make sure you tell
people to have the  person taking Gleevec do the breaking and placing
into the gel  caps.

-Kevin Williams
dx 6/2000
140 mg  Sprycel


Topic:  _Nausea and exercise_ 
(http://groups.google.com/group/cmlhope/t/2c0bf017ee810bc9) 
Joan <[email protected]>  Nov 19 04:51AM -0800


I've been having  mild nausea whenever I take my Gleevec (400 mg) for a
long time but it  wasn't a big problem as long as I avoided citrus,
taking other pills at  the same time or moving too fast afterward.
Recently I started taking  YOGA in the evenings. Although I wait at
least half an hour and sometimes  more afterwards to take my Gleevec, I
have been having trouble with more  severe nausea and vomiting. I've
tried taking the Gleevec at other times  but it seems like it
interferes even more with my life. I was diagnosed  in 2004 and have
been very close to zero. Unfortunately, my last PCR  indicated an
increase. My oncologist wants to up my dose but I talked him  into
waiting a few months. Does anyone have any ideas on decreasing  my
nausea?

Joan

ANGELYN ESDERS  <[email protected]> Nov 19 05:17AM -0800


At the beginning,  in 2001, I felt nausea each time I took my 400mg of 
Gleevec. I worked around  it by getting up early enough to take  half a 
Bonamine 
(motion sickness  pill). After it had time to get working, I would eat a 
big bowl of oatmeal.  Then I took the Gleevec. It seemed to me that the 
Gleevec was kinda buried  in the oatmeal and didn't bother me so much. I also 
found that getting  outside for a litle walk in the fresh air distracted me 
from 
the nausea for  long enough to let it pass.
Some people claim that taking  a serving  of protein for breakfast will 
prevent nausea.
Watermelon has always  helped me with nausea.
After some months I stopped ever having that  problem.
Good luck! 
Angie in Canada

--- On Thu,  11/19/09, Joan <[email protected]>  wrote:


From: Joan  <[email protected]>
Subject: [CMLHope] Nausea and exercise
To:  "CMLHope" <[email protected]>
Date: Thursday, November 19,  2009, 12:51 PM


I've been having mild nausea whenever  I take my Gleevec (400 mg) for a
long time but it wasn't a big problem as  long as I avoided citrus,
taking other pills at the same time or moving  too fast afterward.
Recently I started taking YOGA in the evenings.  Although I wait at
least half an hour and sometimes more afterwards to  take my Gleevec, I
have been having trouble with more severe nausea and  vomiting.  I've
tried taking the Gleevec at other times but it seems  like it
interferes even more with my life. I was diagnosed in 2004 and  have
been very close to zero. Unfortunately, my last PCR indicated  an
increase. My oncologist wants to up my dose but I talked him  into
waiting a few months. Does anyone have any ideas on decreasing  my
nausea?

Joan

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Susan Armour  <[email protected]> Nov 19 08:06AM -0800


Hi Joan:   You said avoiding citrus helps.  You do know that we should not 
eat  grapefruit.  Thats the one fruit that interferes with Gleevec.  I  have 
been on Gleevec since 2000, and in the beginning I found that if I did  not 
eat a good meal before taking the Gleevec that I would get the  nausea.  
Never had vomiting, but felt close to it.  Some people  have found they do 
better taking their Gleevec after dinner, as that is a  bigger meal. Taking a 
increased dose could make the nausea worse, but you  might need to do it to 
get back on track.
You  have to try different things that work for you.  Hope you can get your 
 numbers back down again, and get some relief.
Suzzie

--- On  Thu, 11/19/09, Joan <[email protected]>  wrote:


From: Joan  <[email protected]>
Subject: [CMLHope] Nausea and exercise
To:  "CMLHope" <[email protected]>
Date: Thursday, November 19,  2009, 7:51 AM


I've been having mild nausea whenever I  take my Gleevec (400 mg) for a
long time but it wasn't a big problem as  long as I avoided citrus,
taking other pills at the same time or moving  too fast afterward.
Recently I started taking YOGA in the evenings.  Although I wait at
least half an hour and sometimes more afterwards to  take my Gleevec, I
have been having trouble with more severe nausea and  vomiting.  I've
tried taking the Gleevec at other times but it seems  like it
interferes even more with my life. I was diagnosed in 2004 and  have
been very close to zero. Unfortunately, my last PCR indicated  an
increase. My oncologist wants to up my dose but I talked him  into
waiting a few months. Does anyone have any ideas on decreasing  my
nausea?

Joan

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A support  group of _http://cmlhope.com_ (http://cmlhope.com/) 
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