Thank you. Keep me posted. Michael
_____ From: [email protected] [mailto:[email protected]] Sent: Friday, December 04, 2009 5:12 AM To: Digest Recipients Subject: [CMLHope] Digest for [email protected] - 3 Messages in 3 Topics Today's Topic Summary Group: http://groups.google.com/group/cmlhope/topics * iCMLf Launches Global <> Support and Partnership Program for Chronic Myeloid Leukemia (CML)] [1 Update] * Merry Christmas <> [1 Update] * Hello to My CML Family <> [1 Update] Topic: iCMLf Launches Global Support and Partnership Program for <http://groups.google.com/group/cmlhope/t/330cacc18e66038a> Chronic Myeloid Leukemia (CML)] "Zavie Miller" <[email protected]> Dec 03 07:32PM -0500 iCMLf To those interested in Chronic Myeloid Leukemia (CML): we wanted to make you aware about the attached Press Release from the iCMLf, the International CML Foundation, released at the annual meeting of the American Society of Hematology (ASH), about the launch of its ERSAP programme. Best regards Jan Geissler iCMLf - International CML Foundation _____ New Foundation Launches Global Support and Partnership Program for Chronic Myeloid Leukemia (CML) The newly formed International Chronic Myeloid Leukemia Foundation (iCMLf) has launched the Emerging Regions Support and Partnership (ERSAP) program at the annual meeting of the American Society of Hematology (ASH). The ERSAP Preceptorship Project will commence in 2010, providing training, education and support for 30 clinicians in emerging countries each year. The iCMLf is a charitable foundation recently established by a group of leading hematologists with a strong interest in CML. The mission of the iCMLf is to improve the outcomes for patients with CML by fostering and coordinating global clinical and research collaborations and therefore improving clinical practice and disease monitoring in CML around the world. The launch of the ERSAP preceptorship project, supporting and educating 30 clinicians in 2010 sees the first step on the journey to achieve this goal. "The improved survival in CML directly attributable to the use of tyrosine kinase inhibitors is so dramatic that these new agents must be made available to the greatest possible number of eligible patients as rapidly as possible throughout the whole world", said Professor John Goldman, Chairman of the iCMLf. Clinicians in emerging economic regions may not have easy access to updated knowledge and skills regarding best practice for CML patients. The ERSAP project launched at the annual meeting of the American Society of Hematology (ASH) will provide training, education and support for 30 clinicians each year. To facilitate the sharing of best practice for CML patients in emerging regions, the project will be open to hematologists from developing countries with an interest in therapy and monitoring of CML patients. The preceptorships are designed to provide one-on-one tuition and practical experience. "Access to up to date treatment and follow-up monitoring is essential to treat CML effectively", said Jan Geissler, being a CML patient, co-founder of the global patient platform 'CML Advocates Network' as well as Communications Coordinator of the iCMLf. "We have been closely collaborating with CML patient representatives across the globe, and we know how challenging it can be to get access to appropriate care. As patients we very much welcome the initiative of the iCMLf to share best practice in emerging regions". Five specialist CML centers around the globe will act as hosts for up to six visiting clinicians. The CML expert centers enrolled in 2010 include Hammersmith Hospital, London, Royal Adelaide Hospital Australia, S.Orsola-Malpighi University Hospital, Italy, MD Anderson Cancer Centre, USA and OHSU Knight Cancer Institute, USA. Another ERSAP Project in development is the Partnership Project. This iCMLf project will partner expert CML centers with centers in developing countries to facilitate exchange of scientists, clinicians and nurses involved in CML care, share monitoring and research, to run joint clinical trials, share protocols, and conduct joint training activities. This will provide vital support and networks for clinicians treating CML in developing countries. The ERSAP Preceptorship Project is currently funded with an unrestricted grant from Novartis Oncology. Additional funding is currently being sought for the ERSAP Project. Contact iCMLf - International Chronic Myeloid Leukemia Foundation Nicola Evans Emerging Regions Support and Partnership Programme (ERSAP) Coordinator [email protected] <file:///C:%5CUsers%5CJan%5CAppData%5CLocal%5Cjgoldman%5CLocal%20Settings%5C olk6b%[email protected]> Mobile +61 40699 5409 http://www.cml-foundation.org <http://www.cml-foundation.org/> [email protected] More background information http://www.cmladvocates.net Topic: Merry Christmas <http://groups.google.com/group/cmlhope/t/a82397831af03710> [email protected] Dec 03 05:56PM -0500 Great News and God bless you all. Jeanie<3 In a message dated 12/1/2009 9:19:16 P.M. Pacific Standard Time, [email protected] writes: Great news. Thanks for the update. ____________________________________ From: [email protected] [mailto:[email protected]] Sent: December-01-09 12:33 PM To: [email protected] Subject: [CMLHope] Merry Christmas Hey group, I do hope that this will go through It has been awhile since I have posted and forgot my passwords. This is an update on Little Jonathan. I'm sure after you read awhile that some of you will remeber him. He's really not so little anymore.. He'll be 16 in May. He loves to play Tournament Paintball. A very agressive sport but he has become quite good at it and I love to see him smile. So I grin and let him play with nothing but encouragement. He's grown to be 5'7 1/2 and weighs 114 lbs. for a long time he stayed the same and we were quite concerned. Jonathan had serious pain in his feet for a year or more. Now that has all disappeared. He had stomach problems here and there.... but I started him on Food Enzymes and that seemed to really help. He's a blessing to all of us. A boy that seems to have more wisdom on life then some of us older folks. Take care In His peace Fran & Jonathan Jonathan dx 10/2003 400 mg Gleevec PCR 2/100k Topic: Hello to My CML Family <http://groups.google.com/group/cmlhope/t/98e635b27960d7b8> [email protected] Dec 03 05:55PM -0500 Hi Pat, you and I were dx the same year. I never reached 0 either and Gleevec quit working for me-I was put on Tasigna and it quit after 8 months and am now on Sprycell. My onc just didn't understand why Gleevec quit on me as he said most of his patients were doing good on it. Good to hear from you-I was dx in Jan of 2004. Hang in there CML WARRIOR. Blessings Jeanie<3 In a message dated 12/2/2009 10:45:10 P.M. Pacific Standard Time, [email protected] writes: Pat, It is good to hear from you and we are glad to have you back in the group. Rob On Mon, Nov 30, 2009 at 6:15 AM, [email protected]_ (mailto:[email protected]) <[email protected]_ (mailto:[email protected]) > wrote: If any of you remember me, I'm Pat from TN. I was diagnosed Nov.28th '04, being treated at Vanderbilt in Nashville and I am celebrating my 5th anniversary. I apologize for not keeping in touch, my computer died and it took me a while to replace it due to the economic times. I just want to say thank you again for all the members who were here when I needed them the most...you'll never know how much your kindness and sharing your experiences help me cope and to understand. I am still on Gleevec 400mgs a day and have never reached the big zero. I still have a lot of the side effects but nothing like in the beginning. My main health problem is the emphysema I have. I've been trying to catch up on all the posts I've missed. Many names I am familiar with and then I see more newcomers. I just want to encourage the newly diagnosed CML warriors to continue to be a part of this group, as there are some very caring people here ready to answer any and all questions. My days are pretty confined to home since I am trying to avoid contacting the flu whether it be swine or regular. I have a 2 year old grandson presently living with me so I devote my time and what energy I have to him. I am getting more and more short of breath so my activities are limited. Fighting emphysema is harder than the cml and more depressing. The CML was just something I got but the emphysema, I did to myself by smoking for years, so it's been very hard to deal with. I hope all is doing well and I wish for you all a joyous Christmas season. I'll be in touch. Love,Peace,Hope & Prayers, Pat (the turtle) -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
