I am one year and undetectable on Sprycel. No sores or anything. It's great so far. Blessings, Jeanie<3 In a message dated 8/9/2010 6:13:53 P.M. Pacific Daylight Time, [email protected] writes:
How ironic, I have issues with what I call "cysts" on my face. The Dr. lowered me to 70 mg per day since I had immediately gone into remission on 100 mg per. Well that pretty much did the trick. Now the outbreaks are much less frequent and much smaller when I do get an eruption. On Aug 9, 2010, at 4:12 AM, Suzan Collins wrote: The doctor did try me on Sprycel but within the first week I broke out with severe skin ulcers on my stomach but we did not connect the two together for weeks because they had also given me so medicine for my bad back. So when my doctor realized it he took me off and started me on Tasigna. --- On Sun, 8/8/10, 73hunley <[email protected]_ (mailto:[email protected]) > wrote: From: 73hunley <[email protected]_ (mailto:[email protected]) > Subject: [CMLHope] Re: remission To: "CMLHope" <[email protected]_ (mailto:[email protected]) > Date: Sunday, August 8, 2010, 7:03 PM Suzan, I'm surprised you weren't placed on Sprycel first. That has been the usual progression after gleevec. I was on gleevec for 5.5 years before I started getting mutations that gleevec couldn't handle. Sprycell is like 300 times stronger. I will say the side effects for me were totally different than the gleevec. At this point I'm been on the Sprycel for a little over a year and I'm still totally negative. P.S. I was diagnosed in Dec 2004 with a white count of 360,000. On Aug 7, 6:09 am, Suzan Collins <[email protected]_ (http://us.mc1120.mail.yahoo.com/mc/[email protected]) > wrote: > Hello all I was dxed on June 4, 2004 at 98% positive. I was on Gleevec from then until Nov 2008 and was switched to Tasigna because of all the bad side effects I continued to suffer. I continue to have side effects with Tasigna but not as severe except now I get skin ulcers with the Tasigna. I lost 30 pounds right off the bat when I stopped the Gleevec which was good. HOWEVER my last fish test in July showed me at ZERO on the molecular level. WHOO. It has been a long journey as it is for all of us with side effects and all but what a BLESSING to get the good news. > Suzan -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (http://us.mc1120.mail.yahoo.com/mc/[email protected]) To unsubscribe from this group, send email to [email protected]_ (http://us.mc1120.mail.yahoo.com/mc/[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
